I am 76 and have suffered with RLS most of my life. I have taken Premipexole two different extended times in the last 20 years after my well intended Dr's prescribed this med to give me relief from this diabolical disese RLS.
In my case I was so desperate for some relief I think I would have taken anything.
Today I had my simi-annual appointment with my RLS doctor at a teaching University. He is a world leader in researching RLS and the origin of our illness. We had a very frank conversation about the subject med.
I will make my point about what I learned but first let me give you some background of my experience.
I have taken Premipexole in daily doses of up to .625 MG which is not considered a heavy daily dose.
I have experienced one prolonged augmentation and the pure hell of the resulting withdrawal. I have also landed in the ER two times because of the meds effects. On one occasion I spent three days in the hospital because of a low sodium blood count because of the long term effects of Pramipexole.
My doctor and I worked together to resolve my addiction to Pramipexole and I am not totally off of it as I currently am taking .124 MG X 2 a day. So I am not totally out of the woods as far as getting totally off of the drug. I don't know if I have the currage to totally deal with the effects of totally stopping the drug.
Now to my point. He told me that many of the thinkers / leaders in the RLS field are beginning to belive that prescriptions of Pramipexole for RLS has been a mistake.
I just thought that I should pass this information on to my fellow suffering RLS patients.
Where we go from here? They need more money (about $1 millon) for researching just one current study to help find the cause of RLS. We will never find a cure without more research.
Someone needs to step up and show some leadership to find the cause and cure of RLS