Well, it's funny now.....: I have... - Restless Legs Syn...

Restless Legs Syndrome

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Well, it's funny now.....

lorisnell profile image
7 Replies

I have followed this site for quite a while but this is my 1st time writing in. I am 60yo and have had RLS since my early 20's. There isn't a medication that I haven't tried and subsequently withdrawn from. I am currently taking 4 (37.5mg) Tramadol from about 6pm-11pm. Sometimes 1 during the day. I am pretty careful with what I eat because I have seen that it makes a small difference. My biggest problem is extreme tiredness.

So now my story - last week I had my 1st case of vertigo. It was so bad I couldn't sit up or move at all, extreme nausea, throwing up... very unpleasant. My husband called 911 and we went to the hospital. They got it a bit under control and sent me home with - here's the catch - some anti nausea drugs. I was too out of it to realize the mistake. So I spent about 6 hours with crazy crazy legs with my head telling me to not move!!! It will stay in my memory as one of the worst experiences of my life! Anyways, kinda funny now...

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lorisnell profile image
lorisnell
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7 Replies

Hi, poor you, must have been hell! That is one thing that I worry about, being ill, at home or hospital and having my restless legs to deal with. I know a few people that have experienced rls, especially family, but not every day. I am now looking very closely at my diet, but don't really think it will help that much.

Good luck with the vertigo and hopefully you can have a different med if it happens again.

SLMCP profile image
SLMCP

Hi theres sorry to hear of your experience. I too have suffered with RLS since the age of 13 and have, like you, tried all MEDS going. However I am currently on Pramipexole and codeine and so far so good. Only been on them since September and am aware that with time I will need to update the dose until I can go no further. Good luck to you x

thoughtful12 profile image
thoughtful12

The vertigo and nausea sound a lot like Meniere's Disease - you might check with your doctor if those symptoms continue. If it is Meniere's, here's a link to a natural treatment using pycnogenol, an over-the-counter supplement: naturalhealthresearch.org/5...

Pycnogenol improves circulation - it’s used for all kinds of disorders. It’s very benign with few side effects but nonetheless, you should start off slow to make sure that you tolerate it. You’ll need to give it some time to work - the study shows that it can take a while to make a difference.

Good luck!

lorisnell profile image
lorisnell

Thanks. I'll look into it. So far they have ruled out an inner ear infection. I thought RLS was bad enough. Vertigo is pretty crappy too.

garethevans1 profile image
garethevans1 in reply tolorisnell

i suffer bad with restless legs tried all sorts only thing that works for me tramadol slow realease...150mlg night 100 in morn..i usex to be on 300 managed to drop but cant go lower hope u get your virtigo sorted soon xx

Pippins2 profile image
Pippins2

Same thing happened to me when i had vertigo.Doc gave me antisickness injection and it was 24 hours of HELL.Now i say that i have an allergic reactiin to antisickness meds.ALLERGIC reaction makes them take notice .For future information Zofran is "safe" .When i had my op i had several red wrist bands on as i reeled off everything i was ALLERGIC too.On antihistamines Claritin and Allegra are safe x

rlxcden profile image
rlxcden

So sorry to read all your terrible stories. I do not think doctors take this problem seriously enough just because it is not life threatening. \but it is life threatening in that it is dangerous to not get enough sleep for long periods of time. I had the condition a couple of years ago - thankfully it did not last more than a month and then just stopped. I had it again recently and like you all, suffered from sleep deprivation and huge discomfort. I did not bother going to a doctor as I am a retired reg. nurse and knew I would be told to make life style changes and be palmed off with some drug or other that I would not want to take. So about 2 months later it seems to be under control. Here is what I did - No fried food, animal fats, red meat or burgers, no sugar or fizzy drinkx. Before I go to bed I have a hot toddy with two paracetamol to help my circulation. Do not sit with your legs down for too long before you go to bed - get up and walk about frequently - if you are able to you should go for a brisk walk. The other thing I did was buy two copper bracelets to wear. It may be coincidence but I have not suffered since wearing them. Who knows? I hope any or all of this helps you - my sympathy goes out to you.

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