had enough now.....

[gypsy49]

Had enough it's 6.26am and I've had no sleep been like this for weeks now or even year if I was honest sat here watching my calf muscles ripple on their own blumming arms going for it too gggrrrrr!

the only thing the meds do is make hmmm hard to describe not feel drink but almost like they make my legs feel drunk lol balance is awful try walking in a straight line if I could drive and got stopped im sure the cops would think I've had a few lol plus my eyes sore like they got grit in them from being open for hours I guess got to try get some sleep hate missing half a day if I do sleep or the neighbours thinking im lazy . just me having a moan life eh!

[Mopsy1950]

Hi gypsy 49 ,,sorry your having a bad time ,are you on meds ? if so are you on the right meds,, seems strange some of your symptoms ,someone hopefully will come on soon who knows more of what might be going on than me will think of you and give you a special hug ,

[gypsy49 in reply to Mopsy1950]

Hi mopsy yeah on meds had every meds going so far nothing works think neuro doc giving up on me now lol can't take any Dopaminergic Drugs send rls wappy totally out of control had rls since I was 8yrs old im 53 now know bit about rls .hugs back at ya! x

[Suckerbeagle in reply to gypsy49]

You say you've had every Med. Would you be willing to share? I too am unable to take dopamine agonists. But I do have other meds that work brilliantly.

[gypsy49 in reply to Suckerbeagle]

Gabapentine,tramadol,zapain,clonazepam they're the ones im on now tried all the dopamine ones they didn't work just made things worst , have had loads different ones through the years can't remember them all sorry

[Hidden]

Hi gypsy, you have to sleep when you can, sod what the neighbours think. The rippling of your calf muscles are not a symptom of RLS as far as i know. That COULD be something else. I know you know what RLS is, but just going to ask you, do you still have that urge to move your legs or is it just the muscle rippling.

[gypsy49 in reply to Hidden]

heck yah even worst when the muscles rippling they still do it when im standing I can watch them weird to watch and feel rls getting worst didn't think it could get worst but there you go ..... next time im going get my daughter to video it sometimes just feels like the muscles rippling other times more visual when I lay in bed actually feel like the whole beds shaking never though owt of it thought I was feeling vibrations from lorries up the lane till my daughter slept with me and told me it was me lol only slight tremors but there all the same , I think about what folk think all the time if I sleep in over a certain time did manage to get a couple hours yesterday morning went to bed about 7.15 got up at around 9am hopefully sleep tonight lol gone 1am now .

[gypsy49 in reply to Hidden]

meant heck yeah still have urge to move legs even worst when rippling lol been like it long time now just assumed some had same thing for some reason , cheers for response

[Hidden]

your not the only one... Been pacing up & down now since 11.45.. Hoping to settle now after my 2nd JD..x

[gypsy49 in reply to Hidden]

apart from the 2hr sleep I got yesterday morning I've been at it since other day lol i'll burn out soon like I usually do happens every now and then last time was couple month ago went to bed after a bath at 7pm didn't get up till 6am then went back to bed at 7am till 11am felt more tired cos I've slept than I do when I haven't lol , hope you get some sleep soon x

[Hidden]

I survive on average on about 3 1/2 hours sleep a night but on the odd occasion i get a bit more it makes you feel worse.. Sometimes if i am lucky i might get an hours sleep in the daytime. You just have to grab it if & when you can..x

[14hope]

happens to me to have rls since i was eleven years old passed down the family now 2am just seen a message about lactose intolrence going to give it a try

[gypsy49 in reply to 14hope]

I can rule that one out as I don't have milk not done since I was 13yrs old

[gypsy49]

went and saw neuro dr yesterday said we're out of options nothing left to try wans me to see a neuro specialist see what he say's hmm seen him before all he kept on about was my sciatica and the amount of meds I'm on he didn't even mention RLS when I last saw him to which I said I didn't want see him again soooooooooooo we'll see