Nightmare

Well I'm at my wits end now, not sleeping at all. The repriminrole is making me vomit. And I just feel ill all the time

[Pippins2]

Jenny I remember you saying before that the Ropinerole was not suiting you so I thought you had changed meds? I felt ill all the time I was on Ropinerole and it is the only med I had a give up. due to side effects. I think you have already tried Mirapex ( Pramipexole ) and Gabapentin if you remember correctly? So I would go next for the Neupro patch or Tramadol or maybe you combination of them both. ..Pipps x

[Hidden in reply to Pippins2]

Thank you. Pipps. Yes I said it weren't suiting me but had to give it a fair go. Didn't want to go back to docs and them say. Hadn't given it long enough. X

[Pippins2 in reply to Hidden]

I felt shocking on it and like you I gave it a go hoping side effects would lessen but they didn't so I gave up. Is it helping your RLS?

[Hidden in reply to Pippins2]

It's eased it a bit but not much

[Pippins2 in reply to Hidden]

Sorry you are struggling Janet, hope you can soon get an appointment and try something else,x

[Hidden in reply to Pippins2]

Hi it's jenny again. I phoned docs ,got to have blood test next Wednesday, he's referring me to a neurologist, but won't give me any different meds because I have been ill with the reprinirole. So now I have got no meds until I see consultant whenever that's going to be

[Hidden in reply to Hidden]

Thats awful you are now without any meds for your RLS. Your doctor should give you something, he obviously doesnt understand that because someone has a bad experience with one med, doesnt mean not trying a different. If you are in the UK it could be weeks or most likely months before you see a neuro

[Pippins2 in reply to Hidden]

Hi Jenny, how are you coping wiithout any meds? I think its dreadful that you haven't been given anything else to help you whilst you wait to see your Neurologist. I obviously don't know your circumstances but if you could afford it or if you are in any scheme such as Westfield it might be worth getting a one off private appointment. I am sending you a private message. ...Pipps x

[Hidden]

If the drug is doing nothing but making you worse it would be time to change.

As Pippins2 says it might be worth considering Tramadol and Neupro. Sounds like a great combination, (the Tramadol will mean you wont have to go as high on the Neupro patch and as a bonus has some mood elevating properties).

I had sworn off Dopamine Agonists after my RLS went crazy while I was on Mirapexin. It was only the good advice and support of the people here who put me right, (thought I had augmentation but it was a worsening of RLS).

If you are in the UK targinact is licensed for RLS, (oxycodone and naloxone combined). In the meantime you might get some relief from hot baths - they have been a great ease albeit temporary but beggars can't be choosers!

[beady3]

Hi Jenny sorry you are feeling so rough,why don't you change docs and tell them how Ill you feel your doc isn't much good if he won't help you at the min I am on 1 patch and 1 Tramodol and in a whole month I have had 2 bad night so things are going good ,stick up for yourself because your appointment might not be for 3 months and then I honestly think they don't do much it's what you learn on this website that will help you,best wishes

[hairyfairy]

This is why I haven`t considered using drugs to treat my rls. The side effects are worse than the disorder that theyr`e designed to treat!

[Hidden in reply to hairyfairy]

Yours obviously isn't RLS then

[Hidden in reply to Hidden]

I'm sorry but if hairy fairy had RLS then. They would know we felt and also know there isn't enough publicly about it

[nightdancer in reply to Hidden]

not supportive

[Hidden in reply to Hidden]

Some people have mild RLS, and they havent got to the stage of severe RLS. So, sometimes they would rather hold off from taking med. So, to say that some one does not have RLS is not supportive.

[nightdancer in reply to Hidden]

not supportive, and not nice

[hairyfairy]

I can`t htink what else it could be! An irresistable urge to move my legs some nights is what I`m dealing with.

[Kaarina Administrator in reply to hairyfairy]

Hi hairyfairy, I am sure you do suffer from RLS. Some people suffer mildly with RLS and do not have symptoms every day whilst others suffer very severely every day.

"The European journal or neurology reported a new single question for the rapid screening of RLS in the neurological clinical practice - "When you try to relax in the evening or sleep at night, do you ever have unpleasant, restless feelings in your legs that can be relieved by walking or movement?“. This question has 100% sensitivity and 96.8% specificity for the diagnosis of RLS.

It is recommended that patients with RLS are given the following tests by their medical practitioner, as a minimum:

•Serum ferritin: RLS is frequently associated with iron deficiency.

•Renal function: RLS may be associated with renal failure.

•Other investigations for underlying possible cause include fasting blood glucose, magnesium, TSH, vitamin B12 and folate.

•If the neurological examination suggests an associated peripheral neuropathy or radiculopathy, electromyography and nerve conduction studies should be undertaken."

(RLS-UK website)

[farmermechanic]

I found a particular brand of ropineral made me sick whilst others were fine so it might be worth trying a different brand. Adaptrel is the one I take with little side effects.