I have been on Ropinrole for 7 years and gradually upped my dose to 4 x 1mg per day.
I have now reached the stage where the drug is not working. Has anyone experienced this.
What is the text form of treatment?
PS I had a knee replacement 7 weeks ago and my RLS has been unbearable since then.
Scottie you are suffering from augmentation from the Ropinerole. You need to get off it but this will be difficult to do particularly as you are on such a high dose .You will need to wean down very slowly and will need strong painkillers to help you to do this,Do not attempt to do this without back up meds and medical supervision. Do you take any other medications? ..Pipps x
@+Scottie99,
I am at a much higher dose of ropinirole than you and once in a while It doesn't do the job. I was recently at Mayo Clinic in AZ when I read about a study they did using people like us who have trouble with dosage. They had about a hundred people they gave low doses on opiates. Codine was their choice. They followed every one of them. None became addicted or grew intolerant of the drug and had few episodes of RLS.
Although the study was definitive many doctors simply won't prescribe opiates because they have been told that they are so addictive. Most of us are drug dependent but not addicted. We would be better off on opiates, but some of the state laws are against the doctors best interest and the drug enforcement agents who will come and take their drug permits if they give too many prescriptions to patients.
Also there is a group who gives IV Ketamine once a week for Fibromylgia and as a side effect their RLS left for a week or 10 days until the next dose for pain. Unexplained how it works but it does.
Windwalker
Windwalker, are you referring to a Tramadol type drug? What dosage was taken?
All the sedative type drugs contain opiates. It doesn't matter which one you use. Mayo Clinic did the study with 20/300 codine/tylenol. If you can get the dose right it takes care of RLS and Fibromylgia. I am just a sufferer like you and don't have any real answers but was sharing what I read while at Mayo Clinic in AZ
Pippins, I take one 50 mg Tramadol which was supposed to be taken only when I had bad attacks of Rls ( which is every night these day!). However 50 mg is not enough to have any effect.
Apart from that, the only other drug is dihyrocodine/ paracetamol as an on demand pain killer after knee replacement
Where do I go from here ?
Where do I go from here?
Is this where complaints go?
Where do I go from here?
RLS relief after MANY years...
