New YouTube video

[Pippins2]

There is a new video on YouTube about augmentation. Put RLS Augmentation RLS Foundation in the YouTube search.Elisse has put up a link under the post "Ropinerole " x

[Nellie321]

I have just looked at this youtube video which i found interesting but was surprised to see other Videos of RLS and periodic limb movement on there as well!

I have been on gabapentin 300mgs three times daily since before Christmas which was great with no or little symptoms. However its starting to come back and i am increasing the dose slowly. According to the video on Augmentation you only seem to get this with the dopamine drugs, is this what others have Found. I don't want to increase meds and then RLS just gets worse with every increase . Thanks

[Hidden in reply to Nellie321]

Its is definately only the dopamine meds that cause Augmentation, and Tramadol but very rarely.

[johannasuar]

I don't know how to find this post for the video, I'm VERY interested in viewing it.

[Hidden in reply to johannasuar]

Look for a post by Caz and scroll right through, you will find the link i have put up for the RLS and Augmentation.

[Hidden in reply to Hidden]

Thank you for the video link. I will pass it on to fiends and family to give them some idea of what we go through.

[Kaarina Administrator in reply to johannasuar]

Hi johannasuar, here is the link:

youtube.com/watch?v=WWNjV60...(Not working as expected?)

Kaarina

[johannasuar in reply to Kaarina]

Thank you so much Kaarina. I want one of my sons to see this, he's been tough on me when I told him what I had after he saw me in a small attac before my med kicked in and had the same opinion of me being crazy like most of us have heard at one time or another. I was surprised to hear it's most prevalent us Northern Europeans and Scandinavians. My father was from Finland, he died young so I never had a chance to find out anything about his background, I was two and he had a heart attack Lon an airplane. Thanks again.

[Pippins2 in reply to johannasuar]

Johannasuar i am so sorry your son has been like that towards you thats really sad ...Pipps

[johannasuar in reply to Pippins2]

Pippins 2, he's understanding now, but really, if anyone sees us with an RLS attack they're sure to think we're crazy with some of the movements we do. It's hard for people to understand, we can't explain it because its inexplainable, so he just thought I was going nuts. He's ok with it now. I still want him to see this video but now I don't know how I can email this to him. I wrote the name down so he can maybe find it on YouTube. Thanks for your words of compassion , they're always welcomed.

[johannasuar]

Thank you Elisse, I'll try again.