In September a sleep specialist put me on a 9 week regime of successive and concurrent medications to tackle PLMD. I started on 3 weeks of Melatonin alone (during which I had to struggle with several unmedicated PLMD attacks a night). This was succeeded by 3 weeks of continuing Melatonin (which had had no effect whatsoever during the previous 3 weeks since I identified my occasional insomnia to the specialist as a direct product of the PLMs) alongside 3 weeks of Clonazepam (to which I had reported myself at the consultation as now resistant!)
That 3 weeks - marked by continuing PLMD attacks to the tune of 4 - 6 a night, each necessitating between 5 and 10 minutes of walking around the house - is about to come to an end. The final 3 weeks is to comprise continuing Clonazepam usage, now to be supplemented by Mirtazapine, at the end of which time the situation will be reviewed.
I'm completely baffled. In the first instance, I don't understand why I was lumbered for the first 3 weeks with just a mild anti-insomnia drug and then with a continuing 3 weeks of Melatonin supplemented by a benzodiazepine whose efficacy had long-since ceased.
Now I'm to start a final 3 week regime of the entirely ineffectual Clonazepam alongside an anti-depressant drug with a known (if fairly recent) causal association with PLMD when a.) I'm not depressed, and b.) I already have PLMD, thank you very much!
Access to the specialist is difficult. I'm seeing him privately and would have to arrange a special meeting (whose fee, incidentally, exceeds my insurance allowance for consultations) at least a week into the final part of the regime. The probability is that I'll pass on the Mirtazapine, tail off the Clonazepam and hand over to my local GP (who's good but not an expert in the field) for alternative treatment (part of which might comprise time at a sleep clinic).
However, before I take that decision - which has to be implemented by Saturday - does anyone have any comments, observations or advice that might either clarify the reasoning behind the specialist's 9-week regime or provide guidance as to what course of action to take?
Finally, I'd appreciate testimonials to any particular medication that has proven effective against RLS and/or PLMD. I understand that it's different strokes for different folks, but it would be useful to have something of an empirical database when I go to see my GP.