Co beheldopa 50 mg

[beady3]

I have just been given co benelopa does anyone else take these,the Tramodol had stopped working. Thanks

[Pippins2]

Hi Beady,I have been reading up and asking around about this med as I didn't recognise the name.Turns out it is or at least contains Levodopa ,now that I have heard of! It is a dopamine med but augmentation happens really fast on it ,much faster than on the others,Therefore the expertx only recommend it for those with very OCCASINAL RLS so it is only usec occasionally to lessen the chances of augmentation.As far as I know Beady your symptoms are severe and daily so I am a bit concerned about you taking it daily . Obviously you need to discuss this with your doctor Beady but I am just trying to look out for youPipps x

[Pippins2 in reply to Pippins2]

Should say OCCASIONAL X

[beady3 in reply to Pippins2]

Pippin thanks for reply,I am quite scared of these tabs now I took one at 5.00 and am going to see how I get on I am supposed to take 2a day we are away in the morn I realy hope I am going to be ok ,Pippin would you take them? Xx

[Pippins2 in reply to beady3]

Apparently they work quickly and well but no Beady in all honesty I wouldn't because of the augmentation problems.I have had augmentation before and wouldn't want it again .I cant tell you what to do Beady but myself no I wouldn't.hugs x

[nightdancer]

HI, Beady! I wanted to weigh n your question. That med you are asking about is the oldest dopamine med on the market, and it can be used as needed instead of taking every day. BUT, it will also augment faster than the rest of them, like Ropinerole or Pramipexole. Dr. Buchfuhrer and other RLS experts say that it can be useful for "breakthrough RLS" but it would not be their first choice for a daily medication at all. Stay on the lowest dose possible to ward off augmentation. I cannot take the dopamine meds because of wicked side effects, but if I could, the med you are asking about would be a last resort for me, to be perfectly honest, let us know how you get on with it. Some people have very few issues, but it is not prescribed much at all in the US. Good luck on your trip. Will 'see' you when you get back.

[beady3 in reply to nightdancer]

Thanks night dancer,I am not going to take them,I have still got some Tramodol so will take those while away ,honestly I don't think they are working,went to bed 10.30 leg started 12.15 and that will be it. I will have to wait until we get back of holls to contact doc x

[Pete-1]

Co-beneldopa is the generic name for Madopar which is a drug given to those with Parkinson's Disease.

I have not heard of co-beneldopa being used effectively for RLS. I would be very interested to hear how you found it.

[beady3 in reply to Pete-1]

Pete I didn't find it the doc gave it me

[nightdancer in reply to Pete-1]

It is used for Parkinson's and for short term breakthrough RLS much any more. It is a dopamine med that augments easily, so that is why it is not recommended for RLS. But, it is a dopamine med, and if you just got off one, you don't want to go back on another med that will augment even faster. Also known as levodopa. This was a while back, so am wondering from your other posts if you are still taking this co beneldopa. Most doctors who treat RLS will not use it any more, but it is used more across the pond than in the US, for sure.

[Pete-1 in reply to nightdancer]

Hi nightdancer,

I'm slightly confused regarding what you mean by a "Dopamine med,"?

If you mean a "Dopamine agonist" then Co-beneldopa is definitely not a Dopamine med. It is functionally the same as Sinemet

Sinemet, Co-beneldopa and Madopar are all drugs whose main ingredient is Levodopa.

I haven't heard of augmentation problems with Levodopa as the primary component.

Alternatively drugs in the group known as Dopamine agonist (for example Pramipexole) then this is another matter and as well as augmentation being reported, it seems, regularly as very difficult to stop due to very unpleasant withdrawal symptoms. I, for one can testify to Dopamine agonists being very difficult to discontinue use having gone through a weaning-off procedure.

I have heard of Levodopa drugs causing problems with overdoses dyskinesia and hallucinations. This is usually when these these drugs have been taken for a number of years and then the problem is more related to problems with the bodies inability to store Dopamine.

I continue to use Levopdopa. I have been taking Madopar or generic version (Co-beneldopa) for about 7 years along with (for night time use) Co-Careldopa (sometimes called Half Sinemet) for about a year.

I also use Pramipexole (a Dopamine agonist) and have done so for longer than the Levodopa drugs. About 8 years, probably

The Pramipexole remains useful to treat my RLS and the Madpopar etc. remain vital in keeping me able to walk

[nightdancer in reply to Pete-1]

Pete, not trying to argue with you. Technically, you are correct that the Levodopa tablets that could be sitting on your shelf are not dopamine YET, but as soon as it enters your bloodstream, it turns into dopamine, so is essentially a dopamine med for all intensive purposes. Carbidopa is prescribed with it because it increases the amount of dopamine that goes into the blood stream, therefore increasing the amount of dopamine that can cross the brain barrier. Since you have Parkinson's too, that is your main concern. But, if a med turns into dopamine in your system once you swallow it, then it really is considered to be dopamine, since it takes the same action. I have no doubt these meds help you, for sure and I am glad they do. My father had Parkinson's also and I took care of him the last 10 yrs of his life. Wicked disease, plus he had Alzheimer's and was bipolar. So I was always looking meds up all the time. I understand about what dopamine agonists are, too. Good explanation.

[nightdancer in reply to Pete-1]

It has been listed as a treatment for RLS since I have had a computer, so at least 20 yrs. It used to be VERY popular for RLS in the old days. But, because it can cause augmentation at lightning speed compared to other meds that put dopamine into your system. It is now considered to be VERY old fashioned, by the experts. Doctors who prescribe it now are waaaaaay out of touch on RLS meds, but it IS still listed as a treatment on most RLS web sites. In some countries they do not have the "newer" dopamine meds, so they have to use Carbidopa/levodopa for sheer lack of anything else. I am talking about RLS only in this context. levodopa is still widely used for PD in the US also, but not for RLS only.

[Pete-1]

Ah, sorry beady 3. This is a strange British turn of phrase meaning how did it go or what did you think of it or perhaps did it meet expectations.

[beady3]

Ok Pete I understand now,it isn't until you find out what the doc has given you it isn't going to work. Took one tab last night God did I feel rough after so took a Tramodol instead. Had a terrible night I no they have stopped working but you get desperate for sleep and no pain. Well we are on hols for a week I feel sorry for my husband,I am going to get some pain killers tomorrow and take those during the day,,what are you taking and how is it going x

[Pete-1 in reply to beady3]

Hi beady 3,

I take Pramipexole at near maximum dose but I take it to treat Parkinson's Disease rather than RLS.. Pramipexole is one of those Dopamine Agonists tha a lot of people complain of. including me. I have been taking it for > 6.5 years. I did wean myself it for a while. i.e. probably 3 or 4 days. Withdrawal very unpleasant. Without Pramipexole my RLS goes bonkers. RLS twinges up both arms and down both legs very strong pulses occurring every 15 seconds, then perhaps a couple of minutes and then more then back to 15 seconds again..