I have burning tingling pain in toes and feet is it possible to be rls

[sandra1952]

I have burning tingling toes and feet could this be rls

[beady3]

,well Sandra who knows what it is you didn't give us a lot of imformation ,all I can say is it doesn't sound like it ,hope someone else will reply to you

[Hidden]

Hi Sandra, do you feel the urge to move your legs , an urge that is impossible to ignore? Some oeople do get tingling sensations with rls but burning is not normally a symptom. It could be something else like Neuropathy so best to make an appointment to see your doctor. If you go to RLS-UK website , on the FAQs it gives the diagnostic criteria so taking a look at that may be a good place to start, good luck..pipps

[Pete-1]

Hello Sandra, From what symptoms you have given, no not RLS. The RLS twinges in my experience are like an electric current passing through parts of your body. Typically legs, although for me this sensation at its worst passes from feet up to shoulders then down the arms. The urge to move, to jiggle about as the "current" passes is almost impossible to resist.

With my RLS twinges can pass through the body once every 15 sends for a period then may disssappear for a few minutes then goes back to 15 seconds. Very variable. It is certainly too arousing to allow sleep. Therein lies the major problem with RLS, lack of sleep. It is entirely possible, or likely that youmay get no sleep at all. After a few days or may be weeks of this you are going to be desperate especially if you know of nothing available to treat it. There are a number of drugs available. Anyway the main problem is sleep deprivation leading to desperation to the point of considering suicide. That is how I felt anyway.

[toolcreep in reply to Pete-1]

Pete you describe your RLS EXACTLY the same way that I do (except that I've never timed the "currents"). I try to tell people that it feels like I have an electrical current that "ebbs" up (usually around the knee area and usually in my right leg, but many times in the left, and sometimes in the elbow area) and I feel like I HAVE to flex against it. Then it "flows" out only to return a moment later. (Almost the way contractions come and go during labor, except not so painful LOL) Then I finally have to get up and walk around or take a hot bath. Then I try to go back to bed and it starts up again. The only way I can get to sleep on nights like that, is to wear myself down to pure exhaustion and just pass out...and by the time that happens, it's time to get up again for work. The lack of sleep makes me feel crazy and I miss work so often that I feel sorry as h3ll. I can't function without my meds...and then they stop working after a while and I have to move on to a different type that may or may not work at all. I think that people that haven't experienced it can't know how debilitating it can be, but you are absolutely right....the sleep deprivation is the main problem and can ruin your life!!

[Pippins2 in reply to toolcreep]

Hi toolcreep,My right leg and foot has the creepy crawly sensations that most connect with RLS but my left foot,leg and left arm get the same sensations as you and Pete.It is only during the last few years that my symptoms have changed,before creepy crawlies in both legs.Contractions is exactly how I described my left leg to my Neurologist last week.So different to my symptoms of my right leg I was really starting to wonder if there was a different problem going on with my left leg and now infamous left foot . However as soon as I started back on my RLS meds the "contractions" stopped .Of course the dreadful need to move the affected part goes without saying! My left arm likes to join the oarty too and contracts at the exact same time as my left leg.Such a miserable condition , I know I wouldn't be able to hold down a job now and am just thankful that I no longer need to workThe sleep deprivation to me is the hardest part of all of this.I have sustained injuries walking into walls and falling off the toilet ! This has happened when falling to sleep after nights of no sleep. Thankfully I have learnt and researched so although some nights are tough I have a good understanding of the meds and tend to rotate them .Majority of the nights I now get enough sleep -around 6 hours -, with maybe a couple of pacing, stretching sessions during the night, For 6 hours sleep all in one go most nights I am grateful , good luck on your journey ...Pipps x

[toolcreep in reply to Pippins2]

Thanks for sharing, Pipps!! I've never had an experience like that where symptoms on one side feel different from the other and are going on at the same time. Seems like most of us have fairly different experiences, but all leading to the same end....no sleep!! I am glad that you are at least getting 6 hours...still not enough, really, but if you can catch a little nap during the day that would be a healthy thing to do. I NEVER use to nap or want to "waste" part of my day on a nap until my RLS got worse. Now I LOVE them!!! lol Take care