Since having RLS. I've basically been told that sorry you can't drive anymore, career over..
Taking this a bit further I am sure I am not alone in thinking this, but there is no where to go for Post Support following diagnosis of RLS. For me it is Scary, being reliant on loved ones for transport and finance.
What benefits are we entitled to? Who can help us put our lives back on track? There is support out there but very difficult to find.
Am I alone in thinking that in the main we are a minority group and if we had dimensia or epilepsy or similar there are places we can go that understand and can guide you to cope with the practicalities, offer support and advice for partners.
For RLS there is nothing that understands the condition or offer pathways to support.
Is this something people would find useful? I am happy to start investigating if I am not wasting my time!