having a nightmare.: hi all, new to... - Restless Legs Syn...

Restless Legs Syndrome

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having a nightmare.

welshlamb63 profile image
23 Replies

hi all,

new to this,but struggling with rls,pain so bad last night was nearly crying,no whimp but god i really dont nead this,suffer from anxiety deppresion also and its making me worse.?? dont now wher to go,even have it in the day,doctor just wants me to take strong pain killers but cant take them.?? so frustrated.

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welshlamb63
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23 Replies
connie50 profile image
connie50

hi just want to say welcome & you will find a lot of information on this web site with regards to RLS I have had this condition for 5yrs now I have literary tried everything going, at the moment im weaning myself of repinarole (was on 3mg-4mg a night) then I got augmentation so was told I had to come of it so now im down to 2.05mg & taking tramadol for the pain the only drawback is tramadol makes ME so sleepy, there is lots and lots of meds you can take please see web site RLS SUPPORT GROUP there is a mind of info on there, good luck

PS. if you need to talk just send me a private message

Hi welcome to the site.I know exactly how you feel.I have been a sufferer of restless legs for thirty years, the last 12 severely.Are you taking any other medications? Some meds can make rls much worse so you neef to check this out.You would benefit from seeing a neurologist although I have never seen one! There is a list ofvapproved ones with knowledge of rls.Rls can cause exhaustion which makes anxiety and depression worse so its a bit like chicken and the egg.There are lots of self help tips that help mild sufferers but most severe suffeters tend to need meds.Learn as much about rls as you can then go vack to your doctor andcask forva referral to a specialist, good luck ...kim

Jaynielynne profile image
Jaynielynne

You were in good company last night. I had a total meltdown with pain.

I cried so hard that I'm sure my neighbors heard me. It released a lot of

my serious pain. I wonder if I have depression too. My legs just won't stop

messing with my sleep. I am not on anything but I did have on those magnetic

bracelets that are junk for me. Some guy claimed that thousands of people

got relief. There were a lot of testaments that they worked. I'm boxing them

up and putting them on E bay as decorative jewelry.

in reply to Jaynielynne

This is the thingbJaynielynne we are so desperate for relief we will try out anything new

Pete-1 profile image
Pete-1

Quite a few people take Pramipexole (Mirapex) to treat this problem. I take it in quiite in strong doses as I take this for my Primary condition i.e. Parkinson's Disease. This drug is of the type "Dopamine Agonist", That is it mimics the action of Dopamine that is missing or at least is a shortage of in the brain. Dopamine shortage is also cited as being involved in RLS.

Is it pain you have or more discomfort. Only it occurs to me that if you go and see your GP complaining of pain rather than of strange sensations that are very uncomfortable and prevents sleep then he is more likely to treat you with pain killers as that is what you have complained of?

I always say the sensations of RLS are like a pulse of electricity surging through your arms, legs or whatever accompanied by feelings that leave you with no choice but to wriggle / writhe in response to that pulse, You can't sleep with that going on every 15 seconds or so.

BobM profile image
BobM

Welcome, such a strange thing to say really as it means being here means you are suffering!!!

Pressure your Dr and be willing to change your Dr and get as many drug options as you can, we all have success and failure with various mixes and you need to find yours.

Kindest

Bob

Sue777 profile image
Sue777

Welcome to the site and sorry to hear you are suffering so badly at the moment. Have a look on the RLS Medications on the RLS website on the right hand side of the Home page. You could print off or make a list and take it to show your doctor and ask to try one of them. They do work I am currently taking Ropinrole and getting a good nights sleep ( I would go mad without it!). As Connie says eventually you will probably get augmentation when the body gets too used to the meds but then you try an alternative drug. Good luck. X

lorri214 profile image
lorri214

Do you have a reaction to the pain killers. There are several medications used for RLS. Did you try any of them? It's all trial and error with the meds til you find one that works for you. None of them are 100%, but they definitely help.

I was on Ropinirole - max dose... And it didn't work. But it made me incredibly nauseous. So much so that for nearly a month I didn't eat properly after 3pm. I came to dread the evenings as they was when I was at my worst. I thought it was a new pain killer, but it was the Ropinirole.

Mirapexin doesn't work either!

I've had RLS for ...43 years! And it's in the past 3 years that it had gotten so very bad.

At my wits end.

Someone has mentioned Magnesium... So going to look into that.

in reply to

Hi there is also a magnesium oil spray, handy to use during thd night.Have you tried the anticonvulsants likd gabapentin or pregablin?

in reply to

Pregablin gained me 14lbs in 3 weeks! So off that! Going to try to get that oil tomorrow. I'll do anything

in reply to

Can only find that cream online not in shops.Yes pregablin caused me to gain weight particularly water retention

in reply to

Holland & Barratt have the oil @ £12.99. Let's hope it gives some relief!

in reply to

Was that in the shop? They had never heard of it at my localH n B?

in reply to

I saw it on the website and phoned our local branch, very small town, and they checked and had it! Asked them to jeep a bottle for me. Will prob get the flakes too for my bath. I Googled it and it's quite interesting.

in reply to

Hi any success with the capsaican cream?

in reply to

I haven't got the capsaicin cream, but the magnesium spray and tablets sermon to be working... Whither the RLS is 'having a natural break' or magnesium is working... Who knows! But I've got reliefat the moment! So who cares! I'm getting a nights sleep! Yey!

Wollyhat123 profile image
Wollyhat123 in reply to

I have found magnesium really helps me, however you have to give it time to get into your system and also monitor the dose as I have found it causes me to have diarrhoea, then I just miss a night or two and start again. I do believe it helps me.

in reply to Wollyhat123

Ah... Now that gives me an answer! Thanks! I'm taking the tablet with breakfast then have the spray to hand in bed and most of the time it works, not last night though... Maybe it was the red wine that didn't help it!

Wollyhat123 profile image
Wollyhat123 in reply to

Long may it last, I been sleeping quite well now for a couple of month, just need to find the right dose so I don't have that little side effect.

in reply to Wollyhat123

Lol!

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Treating at Home

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Uses of Magnesium Oil

Posted by Dr Sircus on May 14, 2010 | Filed under Magnesium, Medicine

102

Magnesium supplementation is actually crucial for everyone today but we have to pay special attention to the method of supplementation because this is critical in terms of effective body utilization. “Magnesium is poorly absorbed orally. That is why I start off with injections. By injecting magnesium I can guarantee 100% to bring the levels up. I cannot guarantee to do this with oral magnesium,” says Dr. Sarah Myhill. Dr. Garry Gordon could not agree with her more. What Dr. Myhill did not know when she said this was the discovery of a natural form of magnesium chloride that comes from sea water.

Called Magnesium Oil, it is a natural substance that can be applied to the skin or poured into ones’ bath like Epsom salts. Magnesium chloride, applied transdermally is the ideal magnesium delivery system with medical benefits unequalled in the entire world of medicine. Yet one does not need a doctor to prescribe or administer it. One can relax in a medicinal bath, without a doctor’s prescription or simply put it on the skin and have someone massage you for sublime effect.

Transdermal delivery of medicines is generally considered safer, more efficient, convenient and less painful than injections or IV’s.

Most doctors and patients think of magnesium chloride as a medicine that can be injected while you are having a heart attack and it does save the day for both heart and stroke patients if used quickly enough. I first introduced “Magnesium Oil” in my book Transdermal Magnesium Therapy and have been astonished from the beginning of what a wonderful thing this substance is and how it has benefited so many people.

What I have found is that magnesium chloride, applied transdermally, is the ideal magnesium delivery system – with health benefits unequalled in the entire world of medicine. Nothing short of a miracle is to be expected with increases in the cellular levels of magnesium if those levels have been depleted. There is no wonder drug that can claim, in the clear, what magnesium chloride can do. Most people will show dramatic improvements in the state of their health when they replete their magnesium levels in an effective manner.

When we first started talking about the magnesium I was dying. I knew it inside. I am no longer dying. I feel life in me. I am so happy.

With magnesium oil, the concentrate can simply be applied to the skin or poured into bath water, and in an instant we have a powerful medical treatment. Intensive transdermal and oral magnesium therapy can be safely applied day in and day out for consistent health benefits. Magnesium oil is nothing short of a miracle to a person deficient in magnesium. So clear and observable are the effects that there is no mistake, no mysticism, no false claim made.

There are not too many medicinal substances or medicines that can make this claim. It should be noted that pain management with magnesium employs magnesium oil applied transdermally to the skin. Dr. Linda Rapson, who specializes in treating chronic pain, believes that about 70 per cent of her patients who complain of muscle pain, cramps and fatigue are showing signs of magnesium deficiency. “Virtually all of them improve when I put them on magnesium,” says Rapson, who runs a busy Toronto pain clinic. “It may sound too good to be true, but it’s a fact.” She’s seen the mineral work in those with fibromyalgia, migraines and constipation. “The scientific community should take a good hard look at this.”[1]

Daniel Reid, author of Tao of Detox says, “Using magnesium oil is the quickest and most convenient way to transmit magnesium chloride into the cells and tissues through the skin. 2-3 sprays under each armpit function as a highly effective deodorant, while at the same time transporting magnesium swiftly through the thin skin into the glands, lymph channels, and bloodstream, for distribution throughout the body. Spray it onto the back of the hand or the top of the feet any time of day or night for continuous magnesium absorption. Regardless of where you apply the spray on the body, once it penetrates the surface of the skin, the body transports it to whichever tissues need magnesium most.”

Magnesium Oil and Sports Medicine

Magnesium Oil can be applied directly to inflamed areas.

Transdermal magnesium therapy offers an exciting breakthrough in sports medicine. Coaches can now treat injuries, prevent them, and increase athletic performance all at the same time. Magnesium Oil enhances recovery from athletic activity or injuries. It reduces pain and inflammation while propagating quicker regeneration of tissues. Topical application of magnesium chloride increases flexibility, which helps avoid injury. It also increases strength and endurance. Transdermal Magnesium Therapy is a boon for athletes, coaches and doctors who practice sports medicine.

Dr. Jeff Schutt says that hamstring injuries can be avoided through nutritional support because contraction and relaxation is dependent on adequate cellular levels of magnesium. “A shortened hamstring is a result of lack of available magnesium,” he says. Liquid magnesium chloride can be simply sprayed and rubbed into a sore Achilles tendon to decrease swelling. And soaking the feet in a magnesium chloride footbath is the single best thing – apart from stretching – that you can do for yourself to protect from, or recover from hamstring and other injuries.

Magnesium Massage

One of the most luxurious medical treatments on earth is to receive magnesium massages with magnesium oil on a consistent basis. Having an ounce of magnesium oil rubbed over one’s body by either a trained or massage therapist or by a loved one is heavenly.

There are many ways to calm a person, many healing and medical treatments that can reduce stress, reduce sensory overload, slow the heart and help a person center and nothing does this better than touch. The most beautiful forms of touch are healing techniques and this is what professional massage therapists’ true aim is, to heal through touch. The skin provides the best avenue into the body for many medicinals. When it comes to magnesium we have a method in our hands that is similar in effect to intravenous magnesium treatments that are used to save peoples’ lives in emergency rooms. We simply use the magnesium oil like we would massage oils, or create a special blend mixing essential oil or other massage oils together with the magnesium chloride, which is quite slippery even though there is no oil in the ‘magnesium oil.’

Massage therapists should be introducing their clients to the tremendous benefits of a magnesium massage and it is they who should suggest to their clients to start using it at home. Transdermal application of magnesium is superior to the commonly recommended oral magnesium supplements where absorption is typically poor. In magnesium chloride oil we have a potent natural substance that penetrates the cells with stunning result on cell biochemistry and when loving touch is added to the mix the results are heartwarming to say the least.

In general, for a large adult, spraying an ounce or more of magnesium oil a day all over the body is recommended for six months to recover cellular levels, with that dosage adjusted downward for children depending on their age and size. This coupled with oral intake, especially for adults, is necessary to get the maximum effect out of magnesium. When magnesium levels are at extremely low levels intravenous application is an option and is necessary in emergency situations. Very strong therapeutic magnesium baths yield another level of effect. Such baths compete with intravenous applications but they are no substitute for in emergency situations.

Magnesium Oil and Relief of Pain

Pain relief and muscle relaxation for people with arthritis and muscle cramping is an important and significant benefit of magnesium oil. Magnesium applied directly to the skin alleviates chronic pain, muscle cramps, and in general makes our job of opening up and softening muscles and connective tissue much easier. Magnesium is a potent vasodilator, and smooth muscle relaxant.

The Purest Magnesium Oil

For the very purest magnesium oil we now have to turn to Europe. Deep underground is a 250 million old inactive sea of magnesium chloride oil that has never been touched by modern day pollution and there is enough of it down there to last humanity hundreds of years. It is so pure that I use it diluted as a mouthwash and then swallow what is in my mouth for oral supplementation. It is ideal not only for oral intake but also seems to be better tolerated by the skin, even when used at full strength. This magnesium oil is called Ancient Minerals.

Personally I have just had two cataract operations and I used magnesium chloride eye drops that I made up myself using this pure magnesium oil diluted 15 parts distilled water to one part magnesium. The surgery was a success and my recovery was quick. This same magnesium can be put in a nebulizer and can be used at home by patients both before and after surgery both orally and transdermally to great effect. Surgeons need to become familiar with the transdermal approach for then they can start their patients off with heavy application weeks before surgery and for weeks after since this method of application can easily be done at home by patients. For use with a nebulizer again I recommend only the purest magnesium available. Even the pharmaceutical grades have heavy metal contamination so are not suitable.

Testimony

I’ve just started using the magnesium oil on my 7yr old ASD son. He’s always tested very low in magnesium and I don’t believe oral supplementation is doing that much. I put a few tablespoons of the oil in his bath water, and I also spray it onto my hands & rub it into his skin (tops of his feet & elbows). The reason I chose his elbows was because he’s had this rash (large, bumpy, flesh colored) for quite some time. The magnesium stung at first when I rubbed it on, but after just a few nights, the rash is gone from one elbow and fading from the other!

Rose Langford

[1]ctv.ca/servlet/ArticleNews/...

102

Dr. Mark Sircus, Ac., OMD, DM (P)

Director International Medical Veritas Association

Doctor of Oriental and Pastoral Medicine

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lynnmcguire24 profile image
lynnmcguire24

Painkillers are not the answer for sure. My Sleep Doctor has me taking Requip at night. Supposedly, it helps with RLS. But, I found I couldn´t relax at night so now I take 2 flexeril also. The flexeril will relax the muscles in your legs.

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