I won't give up finding that article. I emptied my cache..but I love
Elisse's reply to my inquiry so I am leaving up this until I do find
that article again..
something quite interesting that the Chinese and
Japanese doctors are thinking about RLS..
MSG could be another culprit.. MSG goes by dozens
of names!! It was added to the bottom of the list
of symptoms of MSG Overload.. This is
something that I want to check in with Dr. B about.
If RLS is one of the symptoms of toxic MSG levels.
I am learning to discriminate articles but since both
cultures are suspecting MSG (a flavoring) as a
culprit, it's worth a shot to ask experienced people.
29 Replies
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I know about MSG its in alot of foods such as chinese food. Some it affects, some it doesnt.
in reply to
It's in frozen pizzas, some drinks, gelatin, and boxed up dinner kits,
it's in so many places that you would have to eat like a bird to
avoid it. (MSG) also there is so much conflicting advice about
RLS and artificial sweeteners. It's popping up on other forums,
in articles..I am finding out that in larger quantities, both can cause
some toxicity.. some believe that it's causing the brain to misfire
sending sharp or achy pains in the joints and some are positive
that it caused their RLS.. That's where I have to learn to discriminate
as well as you and Nightdancer do. I keep going to the rishelp.com
website to reference it but not everything is on that list just yet...
or I am missing it.
in reply to
I wouldn't get too stressed about what you eat. Everything you eat or drink has the potential to kill you. You can die from drinking too much water, you can die if you don't drink enough.
The world is full of oracles of doom. "Aspartame will kill you" often proclaimed despite rigorous testing and approval by bodies such as FDA and absolutely no evidence that it is harmful. (Bearing in mind what I said earlier).
in reply to
I am wondering about the artificial sweeteners. It keeps
coming up in the RA (it's a paid forum) about how bad
it is for anyone with inflammation..I was alive when people
started getting cancer from a soft drink called TAB..No
one believed it back then and there were wars to get it
off the shelves..then later (too late for a lot of people)
they found out that it was the saccharine in the soda that
did it..*a type of artificial sweetener*
I hear tons of ridiculous stuff but rls is new grounds for me.
I am never sure about the conflicting views.
in reply to
If its not on rlshelp then there is a reason, no studies have been done so nothing has been proven. Alot of stuff is just theory.
The link isnt working for me...
in reply to
UGH...I am going to look on again for that excellent article about MSG
I am truly bumming because that article summed up what every
article was saying about RLS and MSG link..I am going to keep
hunting for that article between job assignments that I'm doing
to try to make some money..(it's my day/night job) For now,
I hope so much that this other link works or I am going to delete
my post until I find it again. Next time, I will bookmark it.
This one is about the the glutamate connection to insomnia and RLS...lol. MSG and RLS only affects some people, just like caffeine does for some, or other foods or drinks.
in reply to
Is that right?=))) I didn't ever connect the two. Your help is invaluable to me.
I am by no means looking to write any kind of article or to apply this stuff
to any other websites..I am doing this for me..I want to stop the madness.
I took my dose of Pramipexole about an hour ago...Usually I wait to take
it 5 hours from now..I want to puke..I keep fighting it.. I have a mad headache from not sleeping... the 5 hours last night doesn't make up for the 2 nights
prior to that.. I was awake like an owl..My legs were ridiculous...My spine
never had rls like that..I am suffering hugely right now, this minute.. so
I am standing up doing the march or the stretching while I look at articles..
I am like a mad woman looking for answers.
I want to skip out on doing my work/ work so I can keep looking but
it's not allowed -I took off all of last week. .
I only know about the MSG because of seeing some one post else where, that their RLS is worse when they suspect they have eaten some thing that has had MSG added to it. As usual, it doesnt affect everyone, just like the other foods or drinks they tell us not to eat or drink. Caffeine has no affect on my RLS, but we know others cant even drink one cup of it.
in reply to
Here I thought that MSG was the answer for me, hopefully for
others. I am so glad that you have experience on this. I would
have spent days obsessing over this. It's 630am and I have
been working my regular job for the past hour. I am going
to finish up early and get out to enjoy some fall weather. I
am going to take a break from the reading today. I need it.
So sorry you are suffering, didnt you say you were reducing your pramipexole. ??
in reply to
I was reducing. I reached a hard breaking point today and I
went right back up to my highest dose. I feel that I let myself
down but I sure am a heck of a lot more comfortable. I am still
doing work/work..but now I am sitting down. I have my desktop
running and then health unlocked or whatever information I can
find...and you answered why I am not finding it on rlshelp.org.
It was worth it to fail.. the difference is day/ night in relief. My
cousin called an offered me a couple of her narcotics.. she is
somewhere on here reading stuff but I can't find her yet. She
was reading as a guest - maybe she didn't even create an
account.. But Hello Dear Cousin T if you are reading..
Elisse, I won't survive this disease without the help that you are
always giving me. A stressful situation is completely resolved
in my life ( thanks for your help Leonard) I should be fine but
I'm not really yet.. those big stresses throw the body into a
tantrum of symptoms.
I don't really feel like I have to plow through books, online articles
and magazines, medical libraries, drug websites so much anymore.
since I've calmed down..in the past few hours with Pramipexole..
I almost feel like I'm doing something wrong by looking at very
opposing views of RLS.. My doctor was the one to suggest looking
at opposing views of what I do know about RLS...he said that he
isn't a fan of narcotics, nor of dopamine pills.. This was my GP
though, not my specialist.. so I am taking that into consideration.
Thanks Ellisse & Yikes for your input into this RLS site. I have stopped taking Sifrol for over two weeks and have been putting up with RLS since then. I am trying Self Hypnosis and I think this may be helping. See what happens!
Yikes I was taking 3.75mg Sifrol nightly is that a high dose? What was your highest dose?
so you quit cold turkey with the Sifrol (pramipexole)
Please say how that happened..
My highest dose is the highest dosage that my doctor
will prescribe for RLS..if that level is reached, then
we must go onto another treatment.. that's the
way that my doctor feels. I've seen people who take
higher doses..How did you feel while taking that dose?
Did you start with self hypnosis? I am most curious
how that is working out for you.. Please keep me
updated. I would love to hear some details about
whatever method you arrive at to free yourself from
Sifrol..Also what country do you reside? I am from
the USA..Wisconsin.. very close to the Great Lake
Michigan
in reply to
Stress can have a big affect on RLS for some people. I am surprised that your doctor suggested looking at the opposing views of RLS. If he isnt a fan of narcotics or the dopamine meds. maybe he was just fopping you off, sounds as if he didnt know how else to treat you, if he doesnt like those meds. My personal opinion....looking through all that you have been doing, i am sure you will not find the answer. But that is just my opinion. If you think it helps you to do that, hoping you will stumble on something that no one has thought of then we are hear to read what you have found.
in reply to
I was an obsessed mad woman..in suffering, its an
act of desperation..I do panic when augmentation
pronounces itself. It started doing that for me so I
am pulling back or at least trying to quit with Pramipexole.
I think that you are probably right about nothing being
although I keep looking out for studies that are happening
all over the world..I have my name in for one coming up
at UW Wisconsin Teaching Hospital. I think that I will
be disqualified because I have RA.. and I am on medicine
to halt the damaging feel and look of RA. = /.
My General Practitioner must see me at least a couple
times a year. He is really the only stick in the mud about
narcotics and Dopamine. He would rather use something
that fixes the problems than something that deals with
the symptoms. He thinks that I should hold out on
going that route. He knows what a little healthy nut
I have been -we pass each other out running sometimes.
As RLS247 said, there is so much stigma around narcotics.
He's afraid that those drugs will change who I am or that
I will overdose.. I wish that I didn't feel a "buzz' ON narcotics
but I do and have to give up driving, decision making because
of it.. I metabolize them more slowly - just like you do.. I
hate that fuzzy, disconnected feeling.
in reply to
Always good to look out for any studies going on. If i come across any i will post them. Usually studies for RLS, you have to be med free of any RLS med that i do know from reading about other people who take part in them. I salute anyone who stops their meds to do those studies, i think i would go nuts without taking mine. If narcotics give you a buzz best not to take them for you. Or only on a desperate measure.
in reply to
I couldn't ever tolerate alcohol either in that way. I would get so loopy after just a little
wine or other..to me, it's just not worth it.
Narcotics do not have a place on the road
in the USA..for my state, it means going to
prison if there is an accident that happens on
the road and someone gets killed.. that's almost automatic.. age 16 and up suffer that
consequence for drinking and driving and any narcotics legal or not..we are always instructed to not take pills and drive or operate
machinery.. random drug tests happen in the work place as well as school.. for them, it constitutes the loss of a job, denial for payment of an accident at work and kids, adults get severely suspended from school.
I think that you have to wait a little while to get behind the wheel.. Wisconsin is set up so each family, almost every driver has their own car to get around in...that is true for almost all states outside of huge cities.. Hardly anyone rides a bus, a train or even carpools over here.
We are a bunch of Car Snobs..I always wonder if that is why diseases like rls and the autoimmune diseases have such a strong presence where I live. Lung cancer shows up and other cancers in my area quite a bit more so than in other areas of the USA or the world.
We used to run leaded gas cars around but that ended a long time ago..maybe it's true
that most don't get enough exercise. .. Most
of the parking lots are much bigger than the buildings that people travel to.. seriously. =)
I am, Elisse, considering dropping my meds completely to enter into a study.. I would have to do a study in the USA.. I can't sit on a plane, nor do I want to be far from my family.. I have to get off all of my medicines first, including that RA drug.
Thank you for helping me again!
in reply to
I dont think RLS has any connection to do with driving in cars rather than getting exercise. Leaded petrol is what we used to have before that all got changed. But i dont think its just where you live that the car has taking over from walking anywhere. We all jump into our cars even just to go up the road..!! Altho i have given up my car and driving because either i was too sleep deprived or my meds made me feel not safe anymore on the road.
Good luck if you get picked for the study...i know you will keep us informed...
in reply to
The fumes is what I meant and the lack of exercise is profound here. Most people get in the car to go visit neighbors if it's a two city block walk.. sometimes a good long walk is what it takes to chase away some tension. It's one of the reasons that I run and walk the dogs everyday.
Sleep deprivation is far worse
than any kind of drunk or narcotic induced feeling. I couldn't care for others anymore and make responsible choices for those who were incapable of doing it for themselves so I walked away from the perfect job..Now I freelance and can take many breaks- even nap when I have to. I usually have a 48 hour turn-a-round to get my work in.
in reply to
Ah, ok, but even the fumes would i doubt have a RLS connection. RLS, has been around for centuries, first noted back in the 1600's, no cars around then....people used shanky's pony. lol.
Good to hear you can run...!! I can walk but not run these days...oh yes, i am much much older than you...!
in reply to
elisse, If you ever know someone who is newly diagnosed with RA, it's not a life sentence of disfigurement nor is it a death sentence anymore. There are at least a dozen drugs that work to stop it dead in it's tracks or to slow it down. I was one of the very early users of simponi..that is why I am able to run and do everything except kick a ball..or a wall or whatever would impact my leg..but anyway, there are people who have RA that have one single flare and start the medicines to never progress further.. I will be due for a knee replacement much sooner than those who do not do high impact running like I do. To me, it's worth it!!!
It's going to be hard to live without that drug for as long as it takes to get accepted into a
Go to a specialist! I was at a desperate dead-end after the dopamine agonists (mirapex, etc) augmented and made my RLS worse. Opioids are the best thing I've done to control the symptoms. I feel absolutely no "buzz or euphoric" feeling from them as they attack the RLS and takes about 90% of the creepy crawly and burning sensations away. I was very reluctant to go this route because if the stigma about them but I can tell you that for me, it was worth it. Very worth it. It gave me my life back.
I also know from lots of experience, MSG has immediate inflamatory effect on me resulting in RLS and swelling. I have recently started using Dr Axe's Keto, (ancient nutrition) protien powders and found out (the hard way) there is MSG in them.
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Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
RLS link to iron deficiency and dopamine. Interesting article.
Rls augmentation looking for advice 
refractory RLS, taking morphine
