I'm new to this site

Hi I'm new to this site

I've had the symptoms of rls since I was little but only in the past 2-3 I've been aware of what rls is and that the symptoms have seem to be more stronger/worse like

From a young age I've always had trouble sleeping with the crawling feeling up legs , tossing and turning can never sleep on one side for longer then 5 seconds , can't can never keep my legs still always moving them non stop while trying to sleep as they start getting painful , even during the day I have to keep my legs moving even when sitting down , takes me ages to finally fall asleep and when I do I keep wakin up a few times and during the day I'm really tired and doctors just say I'm suffering from insomnia that's it, I ask about rls but they just tell me I'm too young I'm 30 and my nan suffers from it since she was 50, I've also been told i kick in my sleep since I was very and still do ,

I also suffer from night cramps on my left carf muscle which I take quinine sulphate to provent it, and I get tho jerks that make your whole body jump feels like your either jumped off a building or on a roller coaster going down a big dip , dunno if they are related,

I just feel so drained everyday I can't think straight my mind wanders and I forget things and end up in the wrong place etc tired sleeping pills when I was 16 twice but didn't really work and the doctor didn't want me to have anymore,

My doctors are really useless can't change surgery due to strict catchment area :(

4 Replies

  • If your nan suffers from RLS, its primary , runs in your family, so its certainly rls you have, best advice i can give as far as your doctors concerned, is to keep a diary for a week, and show the doctor how much sleep you have lost, and how bad it affects you, also tell how your nan suffers from it also

  • irlssg.org/diagnostic-crite...

    This site will tell you if you have rls or not, and you could maybe print of some stuff to show your doctor

  • I did ring up nhs direct 2 years ago and told them my symptoms and the nurse told me it all pointed to rls and I told the doctor that but the doctor thought he knew better then anyone else :(

    Will try again take weeks tho for a routine appointment as most appointments have to be made by phone on the day at 8am and I'm never awake at that time it's too early

  • Hi mand82,

    I'm pretty sure even young children can have RLS. One of my daughters was incredibly fidgetty at night, she is now in her 30s and does definitely have RLS - and her own daughter, who is five, is showing signs of following on too.

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