baclofen: can anyone help suffer like... - Restless Legs Syn...

Restless Legs Syndrome

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baclofen

nick-the-turk profile image
7 Replies

can anyone help suffer like all of us with rls real bad tried all meds which seem to work slightly for a while then stop now on iron,pramipexole 0.26 prolonged release basicly i.ve started from the begining again my doctor has now giving me baclofen to take with pramipexole one half a tablet 3x daily anyone else on this medication for rls would love all feed back please

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nick-the-turk profile image
nick-the-turk
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7 Replies
peterk profile image
peterk

I did try baclofen many years ago but at that time I don't think that it really helped me. I don't believe it is widely used in RLS treatment though I am just a fellow sufferer not an expert and your doctor would know best.

nick-the-turk profile image
nick-the-turk in reply topeterk

thanks for your reply think i have to give it a try if it only helps a little its somethink been nearly 5 days with about 2 hours sleep a night now and desperate and working as a postman its hard i.m sure we have all been there thanks again

peterk profile image
peterk in reply tonick-the-turk

I hope that it works for you. It must be very difficult but I have the same problem with insomnia and it is rotten. Please let us know how you get on.

kikas profile image
kikas

hi i had it prescried but not for rls and had an allergic reation, sorry not been able to help much. xx

nick-the-turk profile image
nick-the-turk

thanks for reply only on small dose has.nt seemed to do anything yet but desperate ehough to give anything a try so tired through lack of sleep dosing of writing on here zzzzzzzzzzzzzzzzzzzzz thanks all

Rubylane25 profile image
Rubylane25

Have you tried fentanyl patch. You can start at 12 and eventually go up to 25 and then 37. Worked like magic for me but had to take an anti- depressant along with it as it is a depressant. Not everyone on it gets the same side affects but I do get depressed so am on Paxil with the fentanyl.

kennethcooke profile image
kennethcooke

Fentanyl is a complete no no. It is only now prescribed for end of life. What ever you do, DO NOT take Fentanyl for anything. I was on 50mg for 5 years it took 6 months and Oramorph to withdraw from it. I have not slept at night sine February

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