What Exactly is M.E: Can the BMJ hold a... - Ramsays Disease

Ramsays Disease

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What Exactly is M.E

Effort profile image
8 Replies

Can the BMJ hold a discussion such as this tidsskriftet.no/article/340...

I believe they couldn't but decide for yourselves.

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Effort profile image
Effort
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8 Replies
Seascape profile image
Seascape

" There is a lack of expertise within the social, welfare and healthcare services, and disagreement over the diagnostic criteria. Furthermore, the provision of appropriate treatment, rehabilitation and care is lacking, as is expertise regarding the particular needs of children and adolescents. Research activity is limited. Patients experience stigma and a lack of respect from healthcare personnel"

All familiar experiences in the home country of the discredited Oxford Criteria from 1991 same issues raised over 20 years and no significant changes in attitude.

ringading profile image
ringading in reply toSeascape

Lack of expertise rooted in avoiding the Elephant in the room when ME has been registered a neurological condition by the WHO (world health organisation) since 1969

Where are the armies of neurologists tasked with treating a quarter of a million ME cases - ignoring in a forlorn hope patients go away or can be swept under the carpet with psycho-babble.

Chocminty profile image
Chocminty

Hosting this subject is not only an editorial issue for BMJ the Lancet continue a tradition unworthy of a journal with world renown.

Within a historical context shaming medical ethics remains a strong theme running through reporting covering decades of this health condition.

CheshireKatz profile image
CheshireKatz

This was amongst links meassociation.org.uk/wp-con...

carch520 profile image
carch520

ME is what people with it use and CFS is what NHS use and sometimes for less grief from the punters that pay their wages call it CFS/ME.

Ian123 profile image
Ian123

The Norwegian Directorate of Health has apologised for the way in which ME patients in Norway have been treated. This follows the publication of the ground-breaking research from Haukeland University in Bergen.

After the publication of the Rituximab study by Fluge et al (2011) and extensive media coverage.

A statement from the Norwegian Directorate of Health has been received where they apologise for not having provided the necessary and proper health services to persons with ME.

Such a public apology from a governmental health agency has never occurred before.

Bjørn Guldvog, Deputy Director General of the Norwegian Directorate of Health made the following statement

"I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that."

Think they will find a cure before we ever hear that from the British government with the Department of Health acknowledging ME as real but failing the proper care test that demonstrated how genuine the sentiment.

Arianne profile image
Arianne

Disease with a thousand names and almost as many definitions. The two criteria the Norway health people are using are not identifying the cases clearly enough and that is with around a dozen that can be chosen from depending on what you want from

the description.

budgiefriend profile image
budgiefriend

I would think the answer to this question is a big NO, unless they have a marked attitude change. Not holding my breath.

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