This is a different PSP. There's a process called a Priority Setting Partnership where researchers work with patients and carers to identify important research questions. One has been launched about palliative and end of life care. Everyone here can complete the survey at palliativecarepsp.wordpress.com, even if you are like me no longer a carer.It's about any life limiting illness but it's being led by Marie Curie so other respondents are likely to be about cancer and we want the voice for neurology and particularly PSP and CBD heard!
It closes on 31August.
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Well findings from research are often applicable globally but things like how care is provided may not be, so if you choose to fill it in just be aware of that.
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A word to say. THANK YOU ALL💘
Glad to have a place to share information!
Did your PSP patient work with metals?
