Eyelids: Hi, has anyone any tips for... - PSP Association

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Eyelids

HowDoglover profile image
4 Replies

Hi, has anyone any tips for drooping eyelids, my husband has to throw his head back to be able to see, there are lundi loops & ptosis crutches, but I can’t find anyone to fit them, there are some on line, but could they make the condition worse ?

Thanks

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HowDoglover profile image
HowDoglover
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4 Replies
Hugsformum profile image
Hugsformum

My mum has being having botox injections via NHS to help with this. It is providing some help but hasn't solved it completely. Worth talking to your medical professionals to see if you can get him referred for it to see if it helps.

REOC profile image
REOC

mum has been referred for Botox for her eyelids. One is often closed but the other is better. At the last appointment they said she didn’t need it but we’re hoping they’ll try and see if it helps.

HNGM profile image
HNGM

Hi, we contacted PSPA who told us about Spec-Care ltd and spoke to a guy called Rob which recommended an optician closest to us (Cardiff) who was familiar with measurements required for the lundi loops. He may be able to recommend someone close to you? Hope that helps xx

moparkie715 profile image
moparkie715

hi HowDogLover,

I was diagnosed with blesphospasm and eye lid apraxia.

and I have similar eye problems. Except I take Botox injections once every three months….it does help tremendously but they don’t last three months.

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