Its 7 months now since my darling Husband was taken from me because of this awful illness and it's still not getting any easier. I feel completely alone because people ask how I am but then I realise they are only asking to be polite and don't actually want to get into anything about how I actually am and how much I miss him.
I do read other people's posts on here about their loved ones but don't feel able to comment and offer support because my head and heart know what your likely going through and having to deal with and I don't know how to respond because all I have going through my mind all the time is how this illness destroyed my darling husband and robbed him of life for the last five years. I do think about people on here often and wish I could do more to support everyone. Thankyou all for the support you give me when I do post, as I say I do have you all in my thoughts and wish i could be more supportive. Lots of love ๐๐
Written by
Mad-about-animals
To view profiles and participate in discussions please or .
Dear Mad-about-animalsFirst a big virtual hug ๐ซ
Every day I think about you and the other PSP/CBD carers that are further down the journey than I am. I recognise how people ask how you are and most don't really want the long answer. The loss and pain from this insidious disease doesn't stop when someone dies and the anger is more difficult to find an outlet for than the sorrow.
I'm glad you can share with this forum some times. I hope there is also support/counselling etc available that you might find helpful. I say that with a bit of hesitation - I know there are those who find bereavement groups etc difficult because for a long time your own grief is hard enough without taking in other people's grief and pain as well. Only you know what's right for you, whether is long walks outside, singing with a choir, getting a dog, picking up a paintbrush or tending the garden.
I'd like you to know I've read some of your earlier posts and found them helpful, so you are definitely still a valued supporter.
I hear you and I feel you and I admire you for posting this. Iโm coming up on my husbandโs second, after-life birthday and, yes, Iโm still equal parts angry and sad. And, yes, so very lonely at times though I am almost never alone as I still live with my incredible in-laws. All sentiments and truths should be welcome here. The hopeful and the hopeless, the sorrowful and the joyful, the angry and the peaceful. Your feelings are valid. Donโt ever let them be minimized. Grief is an ongoing challenge. Be well and try to take it easy on yourself. Iโm trying too,
I'm so sorry. I understand. It's only 6 weeks since my husband left me. I feel like I've just finished the most difficult journey of my life in caring for him for so long only to start another difficult journey without him.The emptiness takes my breath away.
I know I have to move forward but it's still too soon. Maybe it's still too soon for you too. Grief is personal. We all process it differently and at different speeds.
I have thought about all those people who have had a loved one snatched away in tragic circumstances, like accidents, wars, etc and wonder how they are feeling. Not knowing what happened, or not able to be with them. And I think maybe I was blessed to be able to be there for him until the end.
And that's a small comfort.
Sending you a huge hug and prayers for comfort and acceptance. ๐ซ๐
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.