What is best curable treatment of Progressive supra nuclear palsy

[1Brijesh]

Patient has1. Eating and drinking problem

2. Vision problem

3. Dehydration since not able to drink liquid

4. Memory loss , weight loss

5. Stiffness in body

Please suggest so Patient life can be easy🤝

👍

[Bergenser]

Dear 1Brijesh. I'm sorry this disease is affecting someone you care for. Unfortunately Progressive Supranuclear Palsy (PSP) does not have any effective treatment or cure.

There are approaches for managing symptoms and making the patient's quality of life as good as it can be with this cruel disease.

Since the disease is rare and each case can be different, you will need to take advice from medical experts.

The organisation "Cure PSP" have published an article that summarises a number of symptoms and the knowledge and experience of managing those symptoms. It's not an easy read but you can share it with any professionals involved in caring for the patient. I've shared the article in this previous post.

healthunlocked.com/psp/post...

Sending hope and wishing you strength on this journey.

[LuisRodicioRodicio]

Hi 1Brijesh!

I agree with Bergenser.

PSP is a disease that is little known by medical science and it is hard for the patient but also for the caregivers, especially the caregiver who directs the different situations

I have been collecting experiences that I think can be useful to caregivers.

Regretting that this disease has reached your family, I offer you our experiences in the hope that they can make your trip more bearable.

Despite having an effective, efficient and gentle GP, the necessary scheduling of visits to his office or to the emergency hospital, the necessary displacement, always complicated, the "roller coaster" of more or less banal symptoms that PSP generates, many of them unforeseen and repetitive, led us to a certain experience that, together with the possibility of consulting by telephone with some medical friends and family at any time, allowed us to alleviate the symptoms quickly until hours or days later we could consult with our GP.

These kind of diseases manifests they self in a similar but different way in each patient. The participants in chats like this offer practices and solutions to learn from, and through the support of a GP and the "trial and error" method, you could achieve a quality of life with interesting moments despite everything.

I am not a physician.

During the 8,5 years in which we was living with PSP I have been collecting our own experiences, symptoms and solutions and that of other members of the chat to offer some notes as a suggestion to PSP/CBD patients and caregivers. The mentioned notes are made with good will and with the best technical criteria that I could contribute, thinking above all in the support of the caregivers.

Wishing the best for you and the patient and if our notes-document with our experiences and the information we have are of your interest, do not hesitate to let me know to send it by email because the private chat of the organization has limited the sending of texts to 33,000 characters and the documents mentioned are notably larger. Sorry

If you are interested on specific PSP problems, related pictures or videos as:

-Video mp4 (200MG): Adaptation of a WC to a PSP patient.

-Accessories for a PSP patient. jpeg pictures

-Communication panels. jpeg pictures

-Symptoms and Stages of PSP_version 29.docx

-Symptoms and treatment suggestions for PSP patients (version 2023-05-02)

-Diferent types of PSP_v10_2021-07.xlsx

Please, send a message to:

luisirasarri1@ gmail.com

Of course, is for free and of course my offer is open to any caregiver who believes it can be useful.

Hug, courage and luck.

Luis

[Dar12 in reply to LuisRodicioRodicio]

Hi I can’t get your email to work to request your information

[LuisRodicioRodicio in reply to Dar12]

luisirasarri1@ gmail.com

[Black1dog in reply to LuisRodicioRodicio]

I am interested in the pictures and videos you have collected. My husband has PSP.

[LuisRodicioRodicio in reply to Black1dog]

Please, send an email to this address:

luisirasarri1@ gmail.com

and I shall send you the documents by email.

Hug and luck.

Luis