My wife died recently-: I suppose I should... - PSP Association

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My wife died recently-

jimsar profile image
30 Replies

I suppose I should be sad, but I'm quite glad, even due to the fact that we had been married for 55 years. I will mis her a lot, but it is such a joy just not having to to see her suffer anymore, as she did for years. The look on her face when she drew her last breath, complete serenity, similar to a smile. It is an ass hole of a disease, as we don't know why people get it, there is no cure, there is no known treatments, to lessen pain. Where do we go from here?

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jimsar profile image
jimsar
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30 Replies
messier profile image
messier

Sincere condolences from all of us in this community. It's not surprising it feels bitter sweet and I'm pleased for you both that you felt able to let her go and she appeared to be ready to go. ❤️

Sharsuk profile image
Sharsuk

So sorry for your loss ending 55 years of togetherness. My heartfelt condolences.

Tippyleaf profile image
Tippyleaf

Dear Jimsar

Sending a big hug, that is a lot of years together how sad the last few saw such suffering for you both.

Be kind to yourself as you embark on this new journey

Love Tippy

Kasenda profile image
Kasenda

So sorry to hear it. My husband is waiting to be released too after 11 years of PSP. May God grant her peace and we know that she is no longer suffering.

LuisRodicioRodicio profile image
LuisRodicioRodicio in reply to Kasenda

A big hug.

Luis

Martina_MP profile image
Martina_MP

That last expression of serenity and ease is something to treasure, along with memories of the good times. Peace to you.

David750 profile image
David750

My sincere condolences jimsar, I know just how you feel as I lost my wife (PSP) after 52 yrs together. I still miss her but have all those happy memories. These memories you will always have, hold on to them tightly 🙏

LuisRodicioRodicio profile image
LuisRodicioRodicio

Hi jimsar!

I join the words of "mesier" and the other chat partners. These kind of illnesses allow us to grieve little by little and appreciate with serenity and depth the efforts, the generosity and the sense of responsibility that allow a long and fruitful coexistence as a couple. The gap left by the death of a stable couple cannot be filled by anyone or anything. Even so, life goes on and there are many positive things to do.

A big hug.

Luis

Granny29335 profile image
Granny29335 in reply to LuisRodicioRodicio

Thank you for this response. My husband has been diagnosed with this only a month ago. He has had symptoms for a few years though. As I read about this disease, my heart grows heavy. We are in our early sixties and have only been married 4.5 years. My heart is so heavy that we have so few memories because he has worked so hard to have money for our retirement. Now, he may not even live that long. I appreciate the words of comfort for Jimsar, but they are a comfort to me as well.

easterncedar profile image
easterncedar in reply to Granny29335

so sorry, Granny. It’s a hard road. Mine was similar. My guy and I, each divorced for many years, were really happy to have met. He was diagnosed about 4 years after. We had just 10 years together, and those last years were a struggle. But I’m very grateful I had the love.

Hug him while you can. Be silly sometimes. Take care of yourself. And stay in touch here.

PSPfight22 profile image
PSPfight22 in reply to Granny29335

Granny… Praying there are some advances in treating this terrible disease for your husband. Enjoy each day w/ each other & do as much as you can.

Wigwambob profile image
Wigwambob

So sad after all these years but I understand the relief for both of you, it is such a cruel illness. All my condolences to you and your family. Take care.

sunflower1602 profile image
sunflower1602

Im so sorry for your loss

jeannette1964 profile image
jeannette1964

i lost my mum feb i fully understand i call it her release date i cared for her full time at my home so i dealt with everything this horrible illness throughs at you i am slowly trying to get my life back as you well too look after yourselfxxx

Dance1955 profile image
Dance1955

so sorry for your loss I don’t know where we go from here we just have to go one day at a time your lovely wife is at peace now you’re the one that will struggle take care my friend be kind to yourself I lost my husband too it’s the cruelest thing I’ve ever seen 💐

45purple profile image
45purple

sorry for your loss of your wife.💜

crwban profile image
crwban

So, so sorry to hear of your loss. I recently lost my wife under similar circumstances. I've asked myself the same question as yourself. The disease is so cruel. Keep family and friends close. x

Runner333 profile image
Runner333

I hope happy memories together bring you comfort. Wishing you peace.

Motts profile image
Motts

Sending Gentle Hugs... Granni B

AliBee1 profile image
AliBee1

sending a big hug. i know exactly what you mean with the look on your wife's face when she passed as this horrible disease gives up its hold. time to look after you now and take all the support that is offered. big jug alibee. sorry for no capitals but had a fall and pulled all the ligaments in my right shoulder so having to use left hand.

timbowPSP profile image
timbowPSP

Hey Jimsar, I love your choice of words, and attitude .... keep it up mate. I am now 81, diagnosed PSP 5 yrs ago, still alive, active, driving slowly, socialising an being a damn nuisance to medics. It's my choice of supplements, therapies, exercise has helped me loads, and not listening to the highly trained quacks! Keep up the good work, and treasure your wife's memory. Best to you. Timbow

Sebuly14 profile image
Sebuly14

Jimsar, sending you warm, understanding hugs. I had very similar feelings when my husband of 57 years died.

daddyt profile image
daddyt

So very sorry for your loss. When you're ready, put on the advocate hat and raise PSP-CBD awareness any way you can in honour of your wife's memory.

Tim

easterncedar profile image
easterncedar in reply to daddyt

A good thought, Tim. I should be doing that.

jimsar profile image
jimsar in reply to daddyt

Thanks for the advice Tim, maybe that's what we should all be doing rather than wallowing in our own pain.

Jim

Purrlie profile image
Purrlie

So sorry for your loss, jimsar. When my husband died very unexpectedly two years ago in April, his relief and release became our family's relief and release too. We miss him dearly, but knowing that he is no longer struggling with the horrid complications PSP inflicts makes it easier to bear and brings us some comfort. Sending you a big hug, Purrlie

Thoughts are with you at this time xxx

ChocolateFaceTeddy profile image
ChocolateFaceTeddy

sending big hugs to you sorry for your loss at least you know your wife is at peace now ❤️xx

Jpinckney2usmc profile image
Jpinckney2usmc

She is at peace. I watch my wife suffer it's the hardest thing I've ever done. It's an asshole disease for sure

Richard33 profile image
Richard33

It is a sad day, but as you say there is a limit to how long you want the woman you love to suffer. 55 years is a good innings......time to return to the Clubhouse.

Richard 🙂

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