Medications for cbd: What meds do you take... - PSP Association

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Medications for cbd

Cianodude profile image
7 Replies

What meds do you take for CBD..my mum takes sinemet 4 times a day ..betmega in the morning and stilnocht sleeping tablet at night...mirap at night and lexepro for anxiety...her right hand has totally closed into a fist..cannot open it without her roaring in pain..someone mentioned botox??..she constantly needs to use the bathroom even if its just dribbles..at night its hard..she lost her walk..then her speech ..right hand and now her left..she was diagnosed with CBD 3 years ago...its very rapid progression.....she gets pains in the front of her legs at night in bed and sometimes during the day..is this the CBD also..sorry for bombarding you all..

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Cianodude profile image
Cianodude
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7 Replies
Javan profile image
Javan

The old bag uses Clonezapam 5ml am 10ml pm

Lamotragine 100mg dispersable tablet 1 am 1 pm

Glycopyrronium 5ml am 5ml pm

Cosmocol 1 or 2 sachets as required

She has had other drugs but they mainly had adverse effects, so we just cut them out and she has a better quality of life. Lots of drugs affect the brain, it has enough to do fighting CBD.

bazooka111 profile image
bazooka111

Wow your journey sounds identical to ours - My Mom was diagnosed in fall of 2017 —- she does not speak, just a whisper - no longer walks, her dominant right hand is curling more and more, along with her right foot. Mom has to really focus on urinating - has false alarms through the night. For the pain and overall meds, Mom is on Mirapax, Gabipentin, and we finally found a dosage of Baclofen that is working. Mom is sleeping more in the afternoon —- her swallowing is the daily challenge now, and we have adjusted her food to more softer diet and it has made the difference.

Cianodude profile image
Cianodude in reply to bazooka111

I have followed your journey since joining because your mum sounds so like my own mum..she's not on baclofen..but is this for the hand?

daddyt profile image
daddyt

If you're considering Botox for her hand, you should know that it will be for aesthetic purposes only - she will not be able to use her hand. Running warm to hot water over the hand and massaging the fingers at the same time works for me. If you're successful, give her a ball (I use a tennis ball) to hold, when the hand begins to clench again it may be easier and less painful to open.

Tim

Cianodude profile image
Cianodude in reply to daddyt

Thanks but when i go near her fingers..she roars in pain..its permanently clenched...to try to dry it is a nightmare alao

messier profile image
messier

Mum isn't on any medication. She recently had botox on her arm and thumb. It's made no difference to the arm and only a very slight loosening of the thumb. Her hand is very clenched. A physiotherapist did get her to open it by lying her down and getting her to do relaxing deep breaths - but that was a few months back now and I don't know if that still works. She normally holds a flannel in her hand to stop it getting to clenched and injuring her skin.

Does the betmiga work? Mum is having major issues with very very frequent night-time urination and urgency. Mum usually falls asleep pretty quickly after waking to pee but I was wondering whether some sort of sleeping tablet might help to avoid the waking to pee and then she would just wet the pad without disturbing her sleep. Or are you using the sleeping tablets because your mum is struggling to get to sleep?

Cianodude profile image
Cianodude

Mum is given 1 and half stilnocht...and mirap..to keep her asleep during the night its the only tablet that doesnt make you groggy in the morning or give you the hungover affect...occassionally she might wake once during the night but thats nothing compared to every hour during the night..she hates to drink anything in the evening time because she knows shell will have to go..betmega..i dont know if it works all i can say is shes not going constantly...she has had 2 utis during lockdown...

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