Restless Legs During Waking Hours

[LeeBeeUSA]

Experiencing extreme restless legs during waking hours. Anyone with similar experience? If so, how treated? Thanks and regards to all. lb

[SewBears]

As part of hubby’s goodnight cocktail he takes Clonazepam to help with restless leg syndrome. It’s a prescription drug and relieves anxiety, helps with his jerky movements and spasms. I tell hubby that it’s like Xanax on steroids. It works for him but everyone reacts differently. You can ask your doctor about it. I hope that you find something that helps.

Xoxo SewBears

[LeeBeeUSA in reply to SewBears]

Thanks a lot. Will check with our doctor.

[Kevin_1]

Hi LeeBee

Reading the forum over the years restless legs is fairly common. As SewBears

says some doctors prescribe a small dose Clonazepam which is also prescribed to help with sleep as it has a long half life. e.g. it stays active in the body for a longer time than some of the others.

However we were advised by a Neurological Physio that exercising the legs is very good for this too. So those small carpet mounted / stand alone exercise pedals are very good if they can be used.

And, that doing exercise maintains the nerve pathways better and this will typically slow the loss of mobility and by continuing with weight bearing for as long as possible the need for a hoist is delayed. Once the person relies on a hoist weight bearing ability diminishes rather rapidly.

I do hope this is of some help.

Be well

Warmly

Kevin

[LeeBeeUSA in reply to Kevin_1]

Kevin:

I greatly appreciate your responding at this difficult time. Again, our condolences.

Interestingly, my wife still rides her exercise bike on a regular basis, despite the fact that she can no longer take a single step on her own.

For sure, we'll ask about Clonazepam. And post any suggestions we get from other sources.

Warmest regards,

lb

[Kevin_1 in reply to LeeBeeUSA]

Thank you lb

Yes, posting any other advice would be great. We can all learn that way.

Wishing you the best on this PSP journey

Warmly

Kevin

[Norsksue]

I have restless legs all the time during the day It’s being treated with Pramipexole that the neurologist gave me.

[LeeBeeUSA in reply to Norsksue]

Thanks ever so much. Will check with our doctors.

Note: Our RLS only occurs during the day. Sometimes, near constant for hours on end. But never a problem sleeping.

Best wishes.

lb

[Hidden]

Both my husband who has PSP and I have restless leg syndrome. It is most annoying and I rub Magnesium Oil (must take a photo) on the legs. Works straightaway. RLS can be due to low magnesium.

[LeeBeeUSA in reply to Hidden]

Thanks a lot. Now we have three possibilities to discuss with the doctors..

Wishing you all the best. lb

[katras]

LeeBee,

I have restless leg syndrome & take prampexole. I get mine in evening. I usually take 2 tablets . I hope he gets relief.

katras

[LeeBeeUSA in reply to katras]

We've called our doctor about a prescription.

Thanks,

lb

[bazooka111]

Same ... We have recently increased medications per Dr order of Gabapentin and also Pramipexole (Mirapex) as well —- it has really made the difference.

[LeeBeeUSA in reply to bazooka111]

We're waiting for a neurologist to approve and prescribe.

Thanks and be safe,

lb