On 29 February, Rare Diseases Day, we launched an awareness campaign called #JointheFight.
The campaign follows new evidence from the PROSPECT study which indicates that approximately 50% of people living with PSP & CBD are initially misdiagnosed with similar neurodegenerative conditions like Parkinson’s.
We want to fight the misdiagnosis of PSP & CBD by raising awareness of the symptoms to MP’s, GP’s, health and social care professionals and the general public.
We now need your help to ensure our collective voice is heard.
You can #JointheFight and raise awareness of PSP & CBD by:
•Writing to your local MP
•Taking Red Flag poster to your GP surgery
•Adding a #JointheFight filter to your Facebook or Twitter profile photo
•Holding an awareness raising talk or event in your community
Find out more about the campaign and download our useful resources, here: