"Evaluating/Treating Urinary Issues in PD, CBD, etc" - Webinar Notes, Recording + Resources

[rriddle]

Brain Support Network (brainsupportnetwork.org) and Stanford University co-hosted a webinar Friday, August 23, 2019 about “Evaluating and Treating Urinary Issues in Parkinson’s Disease, Multiple System Atrophy, and the Other Atypical Parkinsonism Disorders (CBD, PSP, and LBD).”

The webinar focused on urinary incontinence, overactive bladder, urinary retention, and other urinary issues in parkinsonism disorders.

The host was Candy Welch, with Brain Support Network. Candy’s husband Bob was diagnosed with multiple system atrophy (which was later confirmed through brain donation). Bob’s first and most severe symptoms were urinary issues. Candy is a Brain Support Network Board member. She speaks at support groups and conferences (in the US) on the importance of brain donation for research.

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NOTES

Brain Support Network posted notes from Dr. Ekene Enemchukwu's presentation and the extensive question-and-answer period here --

brainsupportnetwork.org/eva...

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RECORDING

The webinar recording can be found here —

youtube.com/watch?v=rPulXhZ...(Not working as expected?)

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SURVEY

If you listen to the webinar recording, please take LESS THAN TWO MINUTES to answer six questions on our survey. See:

surveymonkey.com/r/VYZHB3W

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FUTURE WEBINARS

To be alerted to future webinars on CBD, PSP, LBD, and MSA, join one of Brain Support Network’s email lists –

brainsupportnetwork.org/join

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RESOURCES

For additional information on the topics addressed during the webinar, see:

Urinary issues in Parkinson's Disease (a lot here is relevant to PSP and CBD) -

parkinsons.stanford.edu/ incontinence.html

Top PSP and CBD Resources –

brainsupportnetwork.org/psp

brainsupportnetwork.org/cbd

IN THE US - Brain donation to support PSP and CBD research –

brainsupportnetwork.org/bra...

Thanks,

Robin

[Hidden]

Thanks for posting. I will watch it later.

[honjen43]

Thanks for posting this, Robin. It has helped me track backwards to this symptom onset and gauge roughly how long my hubby had CBD, if in fact that was what it was, since he did not donate his brain for autopsy. Goes back 10 years before diagnosis, and before he died.

Hugs

Jen xxx

[Karynleitner]

Thank you. My husband was just hospitalized with CDIF and another UTI.