PSP parkinosn : Hello My father 65 age... - PSP Association

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PSP parkinosn

Divya85 profile image
7 Replies

Hello

My father 65 age suffering from PSP Parkinson. Any suggestions plz how it will be curable?

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Divya85 profile image
Divya85
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7 Replies
Dadshelper profile image
Dadshelper

Welcome to the site. I am sorry to say there is no known cure for PSP at this time. You'll react and deal with symptoms as they appear. Not all patients will have the same symptoms at the same stages, some may not exhibit all symptoms. It is a progressive disease so things will change as time goes on.

Read up on PSP, encourage your father to safely exercise as most people seem to benefit from it.

Ask any questions you have, there's a huge amount info among the members here.

Ron

Divya85 profile image
Divya85 in reply toDadshelper

Thanks for your quick reply.. so Physiotherapy and yoga will help to control PSP.. so need to continue medicines life long right?

Dadshelper profile image
Dadshelper in reply toDivya85

That is hard to answer to be honest. The physiotherapy and yoga will definitely help but it will not stop the progression. As for medicines I am not sure what you mean. There are no PSP specific medicines yet. Some people have a positive response to the Parkinson's meds and some have no benefit. Most patients eventually get taken off all medicines as they no longer provide a benefit or the side effects get to bad.

Ron

Divya85 profile image
Divya85 in reply toDadshelper

Thank you

PSomani profile image
PSomani in reply toDivya85

Hi ,

Agree with Ron. What you additionally need to do is focus on balance , get the patient to do long walks if possible , start writing if that’s not too late and get a speech therapist too. It just delays the bad elements but they eventually come

All the best

Anshuman

Almor957 profile image
Almor957

Eu acredito que qualquer doença tem cura, caso contrário DEUS seria imperfeito. A cura estará na natureza. Eu sugiro o tratamento com ozônio e óleo de cannabis que não tenham efeitos colaterais, ao contrário dos remédios alopáticos que só remediam. Se ninguém tentar, eles nunca saberão se funciona. Eu conheci um biólogo que me disse que o óleo de cannabis CBD teria pouco efeito, mais eficaz o óleo de cannabis THC.

Hi Divya85!!

I'm sorry PSP has entered your family.

The suggestions of my "chat" colleagues are wise and based on their different experiences. In my case they have been very helpful.

This disease manifests itself in a similar but different way in each patient. The participants in chats like this offer practices and solutions to learn from, and through the "trial and error" method, achieve a quality of life with interesting moments despite everything.

By private mail I send you our particular experiences on PSP-RS that we hope you can find useful.

Hug and luck.

Luis

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