Progressive supranuclear palsy disease (PSP) - PSP Association

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Progressive supranuclear palsy disease (PSP)

Almor957 profile image
10 Replies

Someone with Progressive supranuclear palsy disease, experienced cannabis oil (CBD oil or THC oil)?

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Almor957
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10 Replies
Almor957 profile image
Almor957

Thank you.

Tundrahawk profile image
Tundrahawk

My wife has been diagnosed with CBD and uses medical marijuana lozenges to help reduce her tremors. She also uses CBD oil under her tounge

Almor957 profile image
Almor957

Thank you.

Hi Almor957!

I'm sorry PSP has entered your family.

Generally the two persistent symptoms along the "PSP trip" are depression and insomnia and it is almost a constant to use systematic medication to alleviate them.

Some caregivers include 3 to 6 mg of CBD Oil via subling, usually before lunch but not necessarily, to stimulate appetite, reduce anxiety and as a co-adjuvant analgesic in neuropathic pain.

If you are interested see:

healthunlocked.com/psp/post...

The suggestions of my "chat" colleagues are wise and based on their different experiences. In my case they have been very helpful.

The PSP manifests itself in a similar but different way in each patient. The participants in chats like this offer practices and solutions to learn from, and through the "trial and error" method, achieve a quality of life with interesting moments despite everything.

During the 6.5 years in which we lived with PSP I have been collecting my own experiences and that of other members of the chat to offer this notes as a suggestion to patients and caregivers.

Wishing the best for you and your family and if the document with our experiences and our solutions can be useful, do not hesitate to let me know to send it by private mail through this chat.

Courage and luck.

Luis

Almor957 profile image
Almor957

Não, graças a Deus não tenho ninguém na família com esta doença. Eu tenho um amigo aos 59 anos que fala quase imperceptivelmente e com grande dificuldade, mais como uma pessoa quando está ofegante. Eu tenho muitos estudos sobre cannabis e seus que fizeram milagres em doenças neurodegenerativas e câncer. Muitas pessoas dizem que o óleo de CBD não tem sido eficaz, provavelmente por falta de conhecimento. Primeiro, existem numerosas espécies de cannabis com uma maior percentagem de CBD e outras com THC. Como é um óleo pouco explorado é necessário encontrar o óleo mais adequado para a doença. Dosagem de óleo CBD - Quanto óleo CBD devo tomar? É importante entender que uma dose muito baixa ou uma dose muito alta não lhe dará a melhor chance de sucesso. Se a sua dose for muito baixa, você pode não sentir nenhum efeito. E se sua dose for muito alta,

Regra nº 1: Não existe um "tamanho único" quando se trata de determinar a dosagem "correta" de CBD. A dose efetiva para cada pessoa é diferente com base na química do corpo, gravidade do problema, peso, concentração do produto, etc. Uma ou duas gotas podem ser eficazes para uma pessoa, mas outra pessoa pode precisar de várias gotas do mesmo produto.

Regra # 2: Geralmente é melhor começar baixo e gradualmente aumentar a dosagem ao longo do tempo até que você experimente o resultado desejado. Paciência é fundamental. Embora algumas pessoas obtenham resultados imediatamente, a maioria relata que não vê resultados por semanas ou mesmo meses.

As gotas de óleo CBD que você coloca debaixo da sua língua e permite que ele absorva diretamente em sua corrente sanguínea são a maneira mais popular que as pessoas tomam o CBD. Por exemplo: consumir 25mg de CBD em gotas sublinguais dará ao corpo aproximadamente 4-6 vezes a quantidade de CBD do que uma cápsula com 25mg de CBD. Esta é outra razão pela qual começar baixo e experimentar com dosagem é fundamental.

Quanto a mim esta doença é rara e nunca tinha ouvido falar, apenas experimentando é que podemos chegar ao bom porto. O mais importante é encontrar o óleo CBD ideal, não é alguém que fará o efeito para esta doença.

Obrigado pelo seu testemunho.

Albino Moreira

Debspottery1 profile image
Debspottery1

My husband has just been diagnosed with Parkinson's, and can not use any existing drugs, I see a lot of PSP symptoms, but our Neurologist doesn't agree that it's PSP-nevertheless, we have been using Charlotte's Web CBD oil for his stiffness and balance issues, as well as the blinking, eye freezing, sleep issues and we do see a big difference. I trust Charlotte's Web because they do have more experience and research than most of the other companies I have researched so far. I think once we can get the medical cannabis-and experiment with the different types, in conjunction with CBD oil we will learn more as we go along. Best wishes as we all figure this out. I researched, learned that anyone with melanoma history takes a risk with leva dopa- as research shows 4x higher risk of melanoma. That's why we tried CBD oil- and since I have another pain issue, which it has helped, I prefer CBD over any prescription or OTC pain medications. Nothing to fear with CBD- there aren't any highs with it - and for me- relieves joint pain instantly. So I highly recommend it's use. Just beware of the many products out there with no real research. Charlotte's web is available in many retail stores and online, with savings for repeat buyers. Read about them on the website. Blessings.

Almor957 profile image
Almor957

Thank you for your testimony. I yours that CBD oil (whether it be CBD or THC) does miracles. Good luck.

racinlady profile image
racinlady

We use Jayden's Juice (CBD oil) for my husband who has PSP. I decided to try it when he could no longer speak at all. I can't say that we communicate all that much better, but he is able to say yes or no sometimes and he does try to talk more. We just aren't able to understand what he is trying to say. It definitely helps his appetite which was almost nonexistent before. He was coughing a lot when he ate and that is improved too. We just use one drop under his tongue in the morning. When we tried to increase the dose, he got sick. We don't know if it was caused by the CBD oil or not, but have been afraid to try increasing the dose again. I wish we had tried it earlier. I plan to continue using it as long as it helps. I also think it lessens his anxiety.

Almor957 profile image
Almor957 in reply to racinlady

Olá racinlady,

Certamente não foi do óleo CBD, até porque apenas uma gota é insignificante, o mínimo seiam 15 gotas/dia.

Veja abaixo:

Como com a maioria das substâncias, os indivíduos com mais massa corporal precisarão de mais CBD para experimentar seus efeitos. Com isso dito, uma boa regra para determinar sua dosagem adequada de CBD é tomar 1-6MG de CBD para cada 10 libras de peso corporal com base no nível de dor do indivíduo .

Por exemplo , 20MG-33MG seria uma excelente dose inicial para um paciente de 200 libras, enquanto 15MG-25MG seria melhor para outro que pesa 150 libras.

1lb=0,453kg

Não existe uma quantidade exata

, começamos com uma dose baixa e vai-se aumentando, o que pode acontecer é ter náuseas. Temos que encontrar a dose mais adquada.

Boa sorte!

cameoboy11 profile image
cameoboy11

I have CBD and have tried cannabis oil.but didn't notice any difference

Unfortunately. That's not to say it wouldn't work for someone else. I think it's for managing pain more

.

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