Ignoring behaviour

[Kaylewis]

Mum with PSP for a least eight years. Does anyone else experience ignoring behaviour, sometimes won’t even look at u, also high temperatures 39 degrees, flushed and sweating which then just go away by themselves with no treatment apart from paracetamol? Thanks

[Hidden]

It's a daily battle trying to relay information and getting information from your love one and the looks I get from my guy.it's very frustrating, hang in.How old is your mom,has she gone through menopause. It's not uncommon to have irregular temperature with PSP

Dee

[Kaylewis in reply to Hidden]

Thankyou

[Dadshelper]

It may not be ignoring but more of unable to process clearly, so nothing happens.

Body temps can be affected by the disease. Brain help control body temps and when brain is harmed odd things can happen.

Ron

[NannaB]

People living with PSP eventually lose the ability to move their eyes so if you want your mum to look at you, you will have to put your face in front of hers, at her level. Even then she may not be able to focus on you and appear to be staring beyond you. My husband got to the stage when he couldn’t turn his head so it would have been impossible for him to look at me unless I was right in front of him. His temperature also regularly peaked for no apparent reason as the part of the brain that controls temperature was affected. The GP told me it was the same as a babies not being able to control their temperature as that part of the brain doesn’t develop until later. I used paracetamol, a fan and cool flannel on his forehead when necessary. If the temperature doesn’t go down it could be an infection but it never was with my husband. The GP called it a neurological blip......not a medical term. It happened often.

XxxX

[Kaylewis in reply to NannaB]

Thankyou x

[Kaylewis]

Thankyou.

[Kaylewis]

Thankyou

[Tippyleaf]

Hi Kaylewis

Agree with NannB field of vision changes completely with PSP. But my husband will also ignore me if he feels slighted or displeased. 2 years ago when his brother was staying he ignored me totally no talking/ looking at me for 5 days all because I was late home due to a terror alert. My brother in law couldn’t believe his tenacity!! The ignoring is often for some minor issue but I think it is one of the few ways left my hubby has of communicating his displeasure!!! I try not to take it personally and carry on chatting, explaining what we are doing, eating etc and each day I offer him the opportunity to tell me what is upsetting him. I think after a couple of days he generally can’t remember just knows he is cross with me!!!

Love Tippy

[Marie_14 in reply to Tippyleaf]

Tippy

I don't know whether to laugh or cry reading your story. Amazing your husband could ignore you for 5 days? Crikey imagine if you had really upset him? Lol. Seriously though, it is all so sad and heartbreaking? What a horrible condition this is?

Keep going Tippy. You are doing so well.

Marie x x

[Tippyleaf in reply to Marie_14]

My husband has impressive abilities!!!

Love Tippy

Xxxx

[Kaylewis in reply to Tippyleaf]

Thankyou. C

[PDDJED]

Hi Kay,

My father has had PSP for 4 years (he is nearly 80) and he frequently goes through patches of entirely ignoring my mother to the point of upsetting her! We suspect some dementia type symptoms have developed, as this is not really typical of their relationship previously. Also the PSP does make his responses very slow and it's difficult for him to respond (his face is less animated) so he doesn't have much luck communicating with my mother. The sweating and temperatures may indicate slight infections, and I would ask a doctor about these. My father has problems clearing his lungs of fluid and so has had a chest infection in the past....Hope this is helpful...your mother's situation may be entirely different though.

Best wishes

[Kaylewis in reply to PDDJED]

Thankyou. X

[Kaylewis]

Thankyou x

[Nanny857]

At first I thought W was ignoring me when I would ask him something and he didn't answer. After waiting some time I would say "is it a yes or a no" and then I would get a response. But there have been times when it has taken quite a while before I get an answer ie. 15 minutes. His brain just needs time to sort out the answer and then get the words out. Also eye to eye contact is difficult due to slow movement of eye and facial expression is diminishing. Take care Nanny 857x

[NHGrace]

With my mom I felt it was apathy rather than deliberate ignoring, and certainly not cognition. The apathy can include delayed response, the message gets through but the reply can’t get out. We found it was worst with distractions (which is, like, life!) - crowd, loud tv/music, etc.

hang in there!

[Dance1955]

Oh yes ignoring behaviour all the time to me his carer I hate it he seems to be able to look at other people though 😉