Dentist and PSP

[Wardy01]

Hi all, we are still having constant battles with all things PSP. The latest hurdle we have is finding a Dentist that cater for PSP patients. We are based in essex.

[S7arum7]

Here in Wiltshire we were able to get a referral through doctor or community team, can't now remember whic, to the community dental team. They have longer appointments and better disabled access and the dentist also prescribed a very high fluoride toothpaste. The dentist was very kind and did her her best round my husband not being able to open his mouth. When he was too disabled to get to the dentist, they came to the house twice a year for his last two years. We could not save most of his teeth but at least it felt that someone tried. Good luck.

[Brenive]

When Ivor was diagnosed , I spoke to the dentist on his next check up , as soon as I said PSP.he know about it .I was surprised , and he's gentle and he uses the downstairs surgery, when we book the appointment. ..can't complain. ...Brenda xxx

[lindaD_]

We had a dental appointment at hospital, who then made another appointment for an abstraction on the exact day that my husband died last week

[Kevin_1]

Hi Wardy

Just adding to the other posts.

When you do get a dentist ask them if they will do fluoride treatment as well. Our dentist swabbed my wife's teeth with some sort of fluoride treatment. It took about 5 seconds. Apparently it gives extra protection. Additionally he prescribed a high Fluoride toothpaste which I think is only available on prescription.

Finally we use a very good quality mouthwash because cleaning her teeth well has been so difficult.

Finally ask for any work that is likely to be needed top be done now. Most often later down the line PSP/CBD folk can't open their mouth enough for dentistry.

Good luck

[Kaylewis]

Hi our gpdid a referral and a dentist comes out to the house every year, normal nhs charge.

[FoggyBay]

Our dentist gave the same advice outlined by Kevin. He has been very sympathetic and helpful but we can only go to him because R has a power chair that can be both tilted and raised, so he can receive treatment while in his power chair (although the dentist has to stand to treat him, something they rarely do these days!). Otherwise it would be impossible to attend for dental treatment since R needs a stand-aid or hoist to be moved from one place to the other. I didn't know that community dental teams existed, so thanks for that S7arum7 - something to check out. We always learn something new on this site!

[Spiralsparkle]

Our dentist referred to the community dentist team once Mum mobility started to get poor. They are amazing and so patient and kind and have the facilities to cater for disabled and wheelchairs. They also do home visits when necessary.

Gave the same advice Kevin has outlined.

Mum had a tooth out couple of months ago that I was really worried about but it was done so quick and painlessly. Mum didn't even realize it had been done and amazingly it healed quickly. They had a special electronic machine to administer the injection and in tiny amounts so not more than absolutely was required was given. The same team also do the dental work at the hospital.

[Wardy01]

Thanks for the replies and advice everyone. We will give these things a go

[Katiebow]

Can't add anything more than already stated, Ben was referred to community dentist based in local hospital. He had an electric recliner wheelchair which helped a lot as he couldn't transfer to their chair. They would make home visits but Ben passed away before that happened.

Kate xx