PSP...

[maiocchi]

My husband has PSP.

We Live in Brazil

I would like more about medicine for this

[honjen43]

Hi maiocchi, welcome to this site. I live in New Zealand and my husband died from what we believe was CBD.

You have found a place where you will find, friends, comfort, support, and answers to you questions.

Sadly, there do not seem to be any medications that will cure PSP, but there are ways to help your loved ones to get the best quality of life living with this disease.

Frequently mentioned seem to be exercise, physio, botox, cannabidiol (cannabis oil). Those come to mind first. Others which may be available on trial include trazadone.

There has been quite a lot of comment recently about the Parkinson's drugs (sinamet, madopar, and others) which most have found are not effective with PSP.

If you use the search feature under 'more' at the top of the HealthUnlocked page, you will find the conversations. If you long press on the name or image beside posts, you will be able to see all their posts.

I joined this site to find answers like you, and find all on here are now my friends! We all understand each other and how it feels to be on this awful journey.

I hope you find the same support and care as I have!

Hugs

Jen xxx

[maiocchi in reply to honjen43]

Thanks you

[wear1947]

Hi Maiocchi, I live in Buenos Aires, Argentina.

What type of PSP has been diagnosed your husband?

Was he diagnosed by a GP, a neurologist?

What are the medicines he has received

Hugs

Elena

[Hidden]

Welcome to the group no one wants to belong to.

My husband doesn't take anything for PSP.

You can do a search, top right hand of page,you will see the more tap,search is under it.I'm sure others will chime in.

Dee in BC

[crab2093]

My husband has blended drinks with Moringa leaves which he has been told is an amazing remedy for everything other than that he does exercise daily, short walk daily(he can only manage 1km), hydrotherapy once a week(1hr), regular eye drops, speech therapy weekly for 6 weeks and exercises to go with this, foods are cut up small to reduce choking (also a glass of iced water before each meal stimulates the swallow mechanism). Others have other useful ideas.... good luck