Every day a different challenge, - PSP Association

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Every day a different challenge,

Althea-c profile image
Althea-c
β€’14 Replies

My Barry is not eating well. He says his throat feels like sandpaper.

Is this the build up to using a peg ??

He is going through the angry stage again and is very abusive to the carer.

Althea πŸ’›πŸ™

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Althea-c profile image
Althea-c
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14 Replies
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Yvonneandgeorge profile image
Yvonneandgeorge

Sorry but george does not complain about his threat being sore, oh dear this abusive behaviour is the worst thing, I am sure they understand. Sending you a big hug. What about giving him a tablet when he is like that? Xxxx

Althea-c profile image
Althea-cβ€’ in reply toYvonneandgeorge

Hi Yvonne, what kind of tablet ? πŸ’›πŸ™

Pentland profile image
Pentlandβ€’ in reply toYvonneandgeorge

Right from the beginning my husband was prescribed a mild anti-depressant and so far we have had no problems.

Margaret

Althea-c profile image
Althea-cβ€’ in reply toPentland

Thanks Margaret , Barry has been on an anti- depressant for 3 years but this anger is something new. I think it's another thing related to PSP.

I am speaking to his Neurologist on Monday. Hopefully she can recommend something. πŸ’›πŸ™

Tippyleaf profile image
Tippyleaf

Wonder if his sore throat is from coughing or if he has a throat infection??? Paracetamol with a lemon and honey drink maybe soothing.

Xxxx

Althea-c profile image
Althea-cβ€’ in reply toTippyleaf

Thank you Tippy. I have been using an anti infection throat spray in case of infection. Let's see what today brings.

abirke profile image
abirkeβ€’ in reply toTippyleaf

That does sound good...but remember to administer carefully via a thickened form....

abirke profile image
abirke

My husband did not go through this but he may be experiencing thirst....giving him a thickend liquid might help him. Talk to you Dr first...I wonder if giving him some sort of throat relieving med or herb given to him via a sponge toothbrush would help....even just water on the sponge....((HUGS)) to both you and Barry

AVB

Althea-c profile image
Althea-cβ€’ in reply toabirke

Thank you so much abirke,

I have been spraying his throat with an antiseptic throat spray and he is able to take liquid through a straw.

Maybe today's problem solved.

Althea πŸ’›πŸ™

abirke profile image
abirke

Ohhh and the anger thing....B did not display much of this...but have your asked him how he is feeling about having a PEG...Maybe he just needs to "talk".....

Althea-c profile image
Althea-cβ€’ in reply toabirke

Dear abirke , Barry is very confused,

Don't know how much he will understand about the peg. At the moment it's his way or the highway.

He is so used to being in control.

Althea πŸ’›πŸ™

abirke profile image
abirkeβ€’ in reply toAlthea-c

But he wanted the PEG, right? I read about managing anger using of all things the middle finger....Now in Western tradition we use the middle finger to show someone our FRUSTRATION! but in Eastern medicine when pressed it actually relieves anger.

At the base of the nail, on either side of the tip, just hold for a minute or so then switch to other finger...

As you are doing this take breaths in and out....With Bruce he and I would practice breathing in and out together ....seeing how long he could hold it.....

Rubbing the tip of the middle finger sends a calming message to the rest of the body...

.As I have probably already said ...forgive my dementia (where's the acupressure point for memory)....

massaging can be very good for the patient and for you ....the carer..

Love you Althea...

((HUGS{love}HUGS)) that's hugs with love in between...hahaha

Althea-c profile image
Althea-cβ€’ in reply toabirke

Barry is confused about the peg. Either he doesn't want to understand or he actually does not understand.

I believe he thinks of it as another thing going wrong.

I love the idea of the middle finger.

I massage Barry's hands often.

I love to massage and even my dog gets a good massage. She is so cute.

Her body goes limp and legs collapse with ecstasy.

Much love Althea πŸ’›πŸ™

abirke profile image
abirkeβ€’ in reply toAlthea-c

When I* was getting physical therapy for my shoulder I got a 15 minute massage......I went there more for that than anything.....

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