a june 2017 person

[aliciamq]

My husband of 50 years this Saturday has PSP and Prostate cancer... We deal with Falling, me needing someone to talk to, about things like falling and toilet things, needing to move, darn Drs. ~ and being the best we can be with the PSP that's taken over much of our time. We are not sitting here sad. On some level we seem to be OK much of the time, maybe. LOL This is not my artwork

[aliciamq]

Why would I share this to fb or twitter??????? You're scaring me.

[Marie_14 in reply to aliciamq]

Do you know I have never noticed that before? I think you would have to do it yourself however. Why I have no idea! People come to this site to share their experiences and ask questions. Please don't be scared. This site has been a lifesaver for so many.

Marie x

[honjen43]

Hi Alicia, never heard anyone here suggest sharing on such sites before! Welcome here! You can be sure you are among friends who understand exactly what you are going through and how you feel - because we have been, or are, in that place!

Be sure you will receive help, good advice and sympathy, and will be able to comment on your hopes and fears.

We do get the odd spammer! - but they are usually obvious!

Hugs

Jen xxx

[aliciamq in reply to honjen43]

Thx- That was strange to see. Our friends and family know what's up with us , of course, but, I do not share details. I read a great deal on this site yesterday and was amazed by everyone!!! Just searching "Falling" and finding out I'm not the only one with the broken furniture and reminder tape on the walls was wonderful!!

I try to keep things light when chatting with friends, but it almost seems they bring me down to a sadness place they imagine they would be in in my shoes... We aren't sad people. (angry? maybe~lol) Would we rather be doing something else in Hawaii or somewhere? - sure - but, we're here and intend to keep moving till we can't ~

[daddyt]

If PSP isn't bad enough... prostate cancer too. Stay positive, stay strong. Plenty of good advice and support here.

[Hidden]

I can somewhat relate, doctors were still in the investigation stage of falls, rigidity, etc when prostate cancer was found in dad. Everything else was put on hold and the cancer treatments began. Dad came through the treatments fine and cancer appears in remission for nearly 2 yrs now. 8 months after his final treatment he was officially diagnosed with CDB.

Ron

[Tttp]

Hi welcome to this wonderful site, so helpful we are full of compassion and understanding as we have loved ones withnPSP, some have just been diagnosed others have had it for a while each day is a new step with another symptoms some have all symptoms others have a few, falling is scary as we don't want them to hurt themselves, I suggest getting a helmet to pretext is head,and with the toilet just have do what ever is easy for him and you, we use wipes for my brother so much easier to keep him clean. Wanting to wish you and you hubby a very Happy 50 th Anneriversy, have a good day. Nettie

[aliciamq in reply to Tttp]

Thank You!! Huggies make my day!!!!! Great day to you, too, Nettie!!!

[Tttp]

Sorry forgot to add your art work is beautiful.👍

[aliciamq]

Oh Wow!!!! Where did you all come from - everything I posted on yesterday was from post that said 3 yrs ago or six years ago - I had to decide I was desperate enough to pretend somebody was actually home here - Well, well, what a joy to find real time people here - Thanks for your attentions - and my profile photo is Not my artwork - sorry

[honjen43 in reply to aliciamq]

Most of us look here fairly frequently and think we try to answer quickly! We know it's no fun crying for help and getting no answer!!

Have found other sites on healthunlocked not as responsive, eg pancreatic cancer. Not sure if that is because of shorter term illness and severity, but here with PSP and brain illness we need to be there for the long haul.

And that has produced a very close bond between us all, even after our loved ones are gone. We still have the experience relevant to help others who find themselves where we have been.

Often much more insight and help than GPs or specialists as they do not experience the day to day stuff - Just what happens between visits.

Hugs

Jen xxx

[Jafarrar]

I have gotten so much information from this site. It helps to know I'm not alone in this sickness.❤️🥀

[abirke]

Beautiful drawing...did you do that?

[aliciamq in reply to abirke]

I did not do the drawing - I do draw - Not sure if I can change it out for something of my own - I'll try one of these days.

[abirke]

Yes it

Its healthy to share with our with fellow PSPers another side of ourselves than just carer...

I am!