Psp

[Iansgadan]

I have been advised by a neutritionist to stop taking my medication as it was doing me more harm than good. .Has any body got any thoughts about this and what medication are they on

[sasmock]

Hi, I'm a nutritionist too, and just wanted to say that we're not allowed to advise on medication that's prescribed. In some cases, stopping medication suddenly can be dangerous. I often advise people to have a medication review with their neurologists to check if everything they're on is necessary, but I would never advise to stop without involvement of a medical professional. With some medications, the risk outweighs the benefits, and vice versa, so I do advise people to be informed so that they can make their own choices. My dad is on Sinemet, and we've just reduced his dose (with agreement of neuro nurse) as it's not doing anything, and we felt it may be doing more harm than good (dizzy spells)

[Duffers]

Hi there. My hubby was on sinemet when originally diagnosed with parkinsons but since 're diagnosed with psp, Gerrys neurologist and I together have been reducing the dose 1 tablet at a time but over a couple of years. I wouldn't dream of allowing any different scenario to happen. Too worried about effect. But do check with him again for a slower withdrawal.

Aĺl the best. Marie

[Hidden]

Yes my husband was advised to discontinue the sinenment when PSP was diagnosed. Gradually took him off. Last visit told I could stop cholesterol and reflux meds. So he's only on blood pressure and anti- depression drugs. In the hospital his blood pressure is low, so I'm expecting to be told to stop it soon. Nothing helps this disease.

[Hidden]

Dad's neurologist had him on sinemet and slowly increased the dosage as it wasn't doing anything. After a while dad started having mild hallucinations, talked with neurologist and the dosage was slowly reduced then finally stopped.

Ron

[enzo501]

Heres my uneducated opinion.....been caregiver to my wife for 2 yrs ..shes had PSP for at least 5 yrs. Any drug that stops her leg pulsations knocks her out ! the more sleep she gets ,after the night time sleep is bad ...as it causes atrophy to happen faster and degenerates co-ordination in the muscle groups .With a brace on her left leg we can still walk about 1/4 mile a day with stops and sitting on park bench.....I feel (as does the Neurology dept) that this is best . She takes very little meds...20 mg's of peroxotine in the morning and 7.5 mgs of mertrazapine at nite to sleep ...not as an antidepressant.We have tried all the dopamines ...no reaction..,Selegiline, even 1/2 of a 5 mg pill ...puts her to sleep for 2 hrs....and amantadine 100mg ...no reaction ....I feel that the less meds the better if it works incorporate it if not ....throw it away .....always keep quality of life over quantity ! good luck ...jeff

[doglington]

agree. as few meds as possible - but follow advice of neurologist and reduce gradually. i would distrust anyone who advised stopping meds just like that.

jean

[Iansgadan]

Thanks for ur replies each and every one of u