Charles is rapidly declining and I'm just not ready to say goodbye!
Job is being changed and precarious, new workplace, etc.
Seems very dark right now and I am so heartsick. If anyone is nice to me I just tear up and Charles is sad for me.
Ok for now and I'll take him out this weekend for a drive!
Cuttercat
Drives are good! Once you get Charles into the car, it's plain sailing. No falling, no need to talk, take a bottle, if you have those problems. Most of all, you have to concentrate on your driving and have no time to think about anything else. Thoroughly recommend it!!!
As to the rest, what can I say? Sending very big hug and lots of love.
Lots of love
Heady
You poor dear! Wish I could be there to give my new friend a big hug. Sometimes life is just so hard to bear. I will be praying for you and C. Sending wishes for C's comfort, and your peace.
Just read Heady's post.....words of wisdom....however Heady I can't recommend a bottle(?) while drivinglol...I can recommend an audio book! Again no need for talking...but you are sharing something that ya'll can talk about in short stints ...Like "wow...did he say he was gonna rob a bank ?' and even if it is just the same shared expression...I found it wonderful with B and me....course we were driving for two days...so short stories , or a good song or band may be better, if just driving here and back 
Too many freakin things happening in your life at once...It's hard to do , but if you can put one problem on the shelf while you deal with the other, do it! Don';t go into denial but bringing everything wiht you is so exhausting....You might want to do yoga or soemthing like that...find a way to refresh yourself...a drive is a wonderful start...wish I could be your driver!
AVB
Lol, I think Heady meant a bottle to wee in not drink!!! 😂😂😂 xx
That one made me laugh! I first thought a bottle of maybe WINE but then knew, a URINE bottle! Don't leave home without it! LOL
Thank you Pat, I did mean that. Me, alcohol and a car, not a pretty picture!
Lots of love
Heady
Me neither Heady! 😂xx
hahahahahoh my, sorry Heady....my bad....it's from experience baby that led me to the former thought...never hurt anyone or thing but I spun that wheel!
...and in our case its the bag....He even went back to the gym yesterday...fully bagged with long pants and no leaks!!!
Sorry again Heady...donthateme....
AVB
So sorry Cuttercat. Know just how you feel about being not ready to say goodbye. Have you got plenty of help?
Vicki
Sorry currercat so sorry sending you a big hug xxxxx
So sorry, I wish I could make things better for you, in fact for all of us!
Hugs....Pat xx
I am feeling so sad for you cuttercat .
I am sending you and Charles so much love right now!
Be strong . Xxx
cuttercat I am going through the same thing right now. Latest infections and hospitalizations have accelerated his PSP. Thought I was prepared for this stage. I am so not. I have been a blubbering idiot for the last couple of weeks and am now stoic which is totally confusing everyone including myself. It is like I am all cried out and numb now.
I am sorry for the work issues. Honestly I do not know how anyone can work and deal with this disease with a loved one. You have my upmost respect. I wish I could make it all better for you.
I can offer acknowledgement and support for what you are going through. Go ahead and sob. I came home from the hospital one night and just howled. Gut wrenching wails. Think I sounded like a wounded animal. Woke up in the morning with my eyes swollen but felt so much more calm. Had been trying to hold everything in and getting horrible stomach pains. Now I ask myself what do I have control over? What one thing can I do today that will help our situation. Makes me feel like I have some control over what is happening to us.
Please take care of yourself,
Big hugs, Jayne
Cuttercat:
The heavy heart and crying continues even after they are gone. Love him and live everyday with him like it's the last day. My Les has been gone for almost two months and even though I knew he was struggling, I tried my best to make everyday special for both of us. I miss my Les everyday, but I know he is in peace and watching me from heaven.
Prayers and huge hug my PSP friend.
Nikkie
Hi Nikki, You are in my thoughts and prayers that you know His special peace and, in time, manage to have a happy new life free from PSP.
Sending you a big hug.
X
Niki, are you getting out? Maybe when you feel up to traveling you can take a little vacation. Say California ?
WOW--California! Would you believe that I just got off the phone with my sister and we are planning to travel to California after Christmas day. The kids and I need to get away and bring in 2017 some place new (or at least new for the kids). Any recommendations?
Thanks gold cap!
Huge hug,
Nikkie
