Well, despite all my cynical views, we have been awarded CHC, at the first time of asking!!!
I have agreed a care plan with the VERY NICE lady, who got this through for us. Whether, we actually get it, is another matter,but it is their responsibility now. They have to make sure S is kept safe! We got it on Behaviour, mobility and Nutrition, they came up with high risk. I was very lucky, my sister is a CPN, her job is to get CHC. for her patients, so she oversaw my meeting with the VERY NICE lady from the assessment team!
I know this isn't the answer to all my problems, I know I am going to hate the intrusion into our lives, but this VERY NICE lady said she is responsible for S now, as well as me! To me, at the moment, this is huge. OK, OK, I Know I will be screaming in a couple of days, I will worry about that then!!!
This VERY NICE a lady is going to sort all the care out, so hopefully no more rows with Social services. ( ha! Ha!) All I am asking for is time to breath, time to do the nice things with S, not just the crap! Only time will tell, if I am able to achieve half of my wants!!!
I appreciate, I have been very lucky. I know lots of you are struggling to get this funding, some who are a lot further along the journey, than S is! Please, please message me, if you need some help or advise. I am more than happy to share some of the comments on S's report. But obviously not on the open airways!!!
Well, I for one, have raised a glass or two to the team that assessed S. Hope the rest of you, who are struggling at the moment, will be able to join me soon!
Lots of love