End of life

[Curlytopsd]

My mum has bravely fought PSP for 6 years , and has been in Long term hospital care for the last 18months. Mum has now lost her ability to swallow and we are at the end of life. I just hope and pray my mum will not linger and suffer anymore. This is an evil horrible disease, to which my mum needs a swift release . Thanks for reading x

[peterjones]

hi curlytopsd well I also hope your mum does not sufferer anymore mate im very sorry for you to have to go through this with your mum let us hope that she has a peaceful ending bless her

peter jones queensland Australia psp sufferer

[GenaBenedict in reply to peterjones]

curlyotpsd. I FEAR I'M STARTING THAT TIME IN MY PSP. I'V HAD IT FOR AT LEAST 7 YEARS BUT DIDN'T GET PROPER DIAGNOSIS UNTIL JULY 2014. NOT SEEING MY NEW NEUROLOGIST UNTIL APRIL 15- 2015. I WILL SO MY BEST TO STAY POSITIVE. MY CG'S ARE VERY HELPFUL SO I GET ALL THE HELP I NEED, WILL PRAY THAT SHE GOES PEACEFULLY. IF YOU ARE A CRISTIAN PLEASE HAVE YOUR PASTOR OR PRIEST GIVE HER HER LAST RITES,MOST IMPORTANT SURE HER FAMILY & FRIENDS VISIT HER SO THEY WILL GIVE HER THEIR LOVE AND WILL NEVER BE SORRY THEY DIDN'T PAY THEIR LAST RESPECT, TO LOSE SOMEONE THAT YOU LOVE IS HARD TO TAKE. HOPE I HELPED EASE YOUR PAIN. GENA

[easterncedar]

I'm wishing for you what comfort there can be in such a painful time, and that your mother is freed of her suffering with peace. Love, Easterncedar

[NannaB]

I echo what the others have said.

Sending you a big hug.

X

[Heady]

Sending lots of love and hugs at this very sad time for you.

Lots of love

Heady

[Yvonneandgeorge]

Sending you much love and my prayers Re with you at this sad time.

Yvonne xxxxxx

[nannygoon]

Just read your post so sorry for you, it seems a bit similar to my sister (81) she has had it for 4/5 years been on total purreed diet now and for about 3/4 weeks her swallow has got worse and food is just running out her mouth, then today nursing home called to say she is quite breathless was put on antibiotics but they could not get her to swallow anything today even the medication, it may sound bad but I hope she has finally reached the last stage and will get a peacefully end. Take care thinking of you.

[jillannf6 in reply to nannygoon]

HI CURLYTOPSD

I CNA ONLY AGREE AND REITERATE WHAT HTE OTHERS HAVE SAID ONT EH SITE

BIG HUGS OT YOU AND URS!

LOL JILL

PSP PERSON IN THE UK

[Curlytopsd]

Thank you for all your kind thoughts xxx mum very peaceful now x

[Lieve]

You are in my thoughts - wishing you a loving goodbye with your mum. She is surrounded by your love. xxx

Lieve

[Auntiemary]

Thinking of you x

[littlesupermum]

Thinking of u all x

[StephK]

My mum is currently in the same situation and can no longer breathe without help of a respirator! I can sympathise with u at this very sad time and hope our mums meet on the other side xx

[nomansland]

After being sole caregiver for 11 years I feel your pain...love Rollie

[myjual]

my sympathies to you and your Mum. I hope research brings hope or relief to all sufferers soon . xx

[mrsbeenk]

Praying for you as it is so very difficult! Due to an accident a few years ago that broke a vertebrate in my mom's neck, she had a stomach tube inserted. This has made her linger on long past her losing her ability to swallow. It is so sad and yet they do not recommend stopping feedings until she is no longer to tolerate them. I am not for assisted suicide and believe our Sovereign God has a plan for our family! But it is still so very difficult to watch her dwindle away so slowly! My heart goes out to you in these last days as I know ours will be coming along the way. Blessings to you!

[ritak]

Having seen my mother go through 8 years of PSP, I can understand your helplessness. She passed away last month and left a vacuum in our lives. Just love her and make her as comfortable as you can.

Thinking of you,

Rita

[blackcushion]

Thoughts are with you at this sad time xx

[cabbagecottage]

hugs to you all .

[dkt48]

Many prayers for you and your mum. My husband John is also nearing the end of his journey with this awful horrid disease. I know a lot of love is being sent your way. God bless.

[GenaBenedict]

curlytop........... I FEEL FOR YOU . I WISH MY DAUGHTER HAD THE CONCERN FOR ME AS YOU DO FOR YOUR MOM.I ENVY YOU, BECAUSE YOUR LOVE FOR HER IS A WONDERFUL THING. WHEN SHE IS GONE YOU WILL ,IN YOUR HEART THAT YOU HAVEN'T FAILED IN YOUR CARE FOR THE MOM THAT NURSED YOU WHEN YOU WERE A CHILD OR EVAN A AN ADULT YOU HAVE A WONDERFUL RELATIONSHIP WITHER HER. THAT MAY BE MY PROBLEM. I HAD NO MOTHER FIGURE TO TEACH ME........... MY MOM PASSED AWAY WHEN I WAS ONLY 4 YEARS OLD. I DON'T THINK I WAS A BAD MOM. MY GRANDSONS LOVE ME & ALSO THEIR GRANDAD., WHO I LOST IN 2013 .MARRIED FOR 59 YEARS & 69 ..DAYS , I'LL BE PRAYIG FOR YOU .......................... GENA ....

[nannygoon]

Sorry to hear that Curlytops, my sister Rose lost her ability to swallow also, but fortunately after just being on pureed diet for about 3/4 weeks she lost her battle on Saturday 4th. April we got her the last rites and I was at her side with other family, it felt like a great weight had been lifted from my shoulders and also that Rose is out of her suffering now.Hang on in hold her hand talk to her play soft music that she liked, and I will pray for you both.God Bless.