Hello all, my first post here. I dint know where else to go, so here I am, trying to understand PSP.
My dear mum Carole was just 63 years old when she passed 30th May this year, we only got a diagnosis of PSP in July 2013, so everything is still surreal. Mum was previously diagnosed with Parkinsons in 2011.
I suppose I'm looking for answers, I cant understand how this has happened so quick to my mum. Everywhere I read about it, you live for years still. This must be the worse Illness yet it seems its very unknown within the NHS.
I am hoping to raise a lot of money to put in research for PSP something I believe could be cured. My mum went through too much, its not right. I feel so confused, I dont know what to do, anyone got any suggestions please