My husband is Cambridge educated an MA BA and just the cleverest man I have ever met.even Dr. Golbe said this about lack of intelegence
One thing that really bugs me is time and ... - PSP Association
One thing that really bugs me is time and again I read "PSP is usually diagnosed in people with low intelligence" what rot
21 Replies
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Here! Here, Joey, my husband has two degrees, is a doctor in one of them. They had to devise different tests when measuring his mental capacity!!! Just proves they still know nothing about this blasted disease!!!
Lots of love
Heady
First time I've heard this...what a load of waffle.
And the moon is made of cream cheese!
Dorothy t
It seems to be a matter of what "sample group" one studies. Here is an extract from another paper on factors associated with PSP..........(I've included the next paragraph about "food" just for interest....but we have to take such research factors about education and food with caution until similar studies are performed by a larger number of researchers in different places)
Like Golbe et al, we found an increased risk of PSP in subjects with a lower education level, while Davis et al, reported than PSP cases had a higher education level than controls. However,in the latter study, cases came from an academic neurological clinic, whereas controls were recruited in a community hospital.The authors highlighted that this could lead to a selection bias because a more distant referral probably correlated with a higher socio-economic status and greater education attainment. In our study, we tried to minimise this bias by recruiting cases and controls in the same hospital and by matching cases and controls on place of residence.We also found that cases ate meat and poultry more often and fruits less frequently than controls. To our knowledge, no previous study has been published on dietary habits in PSP. This finding is consistent with the relationship with meat consumption 18 and high saturated-fat and cholesterol consumption19 20 that has been found in Alzheimer disease belonging to the Tauopathy groups, like PSP.These results must however be interpreted with caution because retrospective assessment of dietary habits is affected by measurement errors and biases, and because of multiple tests made in this study, random findings may occur.
(The paper by Davis et al reporting PSP cases had higher education was co-authored by Golbe who found the opposite in his own other research paper)
Take it all "with a pinch of salt"!
Cheers
T.
jimandsharynp in reply to
Strelley, Our neurologist said the same about Turmeric and Coconut Oil...
"There haven't been enough studies to prove these are of value. We can't base something on one study, in one geographic area, in one part of the world, with limited participants, and get a positive out of it." I had told him about a place in South Korea where they had tried stem cells with some success for PSP. His response was the same as above. Jimbo
Not heard this before. My dad has CBD and is very intellgent and well educated. Always exceptions to the rule but still...Interested in the food aspect. Despite being free of problems most of his life, Dad can't now take gluten. It was his skin that was affected (so not coeliac's disease) and has been treated as a separate condition to the CBD as it was apparent first, but I have heard at least one person on this forum talk about the same thing. Could there be a connection? Apart from anything else, it's just one more thing for poor Dad to contend with. Plum.
Yes, I never heard this before and my husband had a Masters degree and was exceedingly intelligent. I simply won't even think this is true although it seemed that the link with intelligence was very low. I know what I know about my husband who has since died.
Caroline
Wow, I never read that. My husband has a doctorate in English from University of California, Berkeley, a professor, with many published books and is wicked smart. His father died of PSP, also extremely intelligent man, and I was told it is not inherited..before he was definitively diagnosed with PSP. I think the disease is under-diagnosed as Alzheimer's disease even though there are clear symptoms for PSP. Stupid doctors not stupid patients.
I, probably like most folk who have a diagnosis of PSP in the family, have read all I can about the disease but have never read this. As my mum would have said,"what a load of Tommy Rot".
Nanna B
First I heard of this. Total ROT. I live in the States which doesn't imply our docs or ourselves are better than anyone else...just hadn't heard that one before. It's probably circulating around here somewhere; if I come upon it, my opinion/insight will be heard. Loudly. I'm a person with PSP, mid-stage, and am not of low intelligence. How degrading, humiliating, and degrading!
Dear Joey,
I recall reading of a survey attached to an article on Dudley Moore. It was of how families who had lost someone through PSP spoke out about a media article (I think newspaper?) that described people with PSP as selfish and lazy.
Not only did people contradict the report with facts they also spoke of how -
Each person had an extraordinary ability to learn and many maintained their genuine skill in learning in their middle age - basically always learning and achieving....
Each had a genuine interest and love for music. If they could not play an instrument or sing well could instead easily recite word by word lyrics and were very knowledgeable about music styles and artists
What the article also touched on was how each family member dealt with some mental anguish as their loved one lost interest in their lives - which I gather is where the newspaper article probably got its base storyline from.
Regards,
Alana - Western Australia
in reply to SharonAB
That's really interesting Alana as my husband loved all kinds of music sang in two choirs and was a very talented musician and was always learning new things and very organised and busy busy busy that I think is the hardest thing for him not being able to do anything other than sit and endure.
Oh how I hate this bloody cruel disease.
Rubbish! Mam was also a college graduate who also did many courses as she got older after she retired. She loved learning. The food bit on the other hand has caught my interest. She would have been a big red meat eater. I am a big believer in food causing a lot of problems!
Hubby was the same, always taking a new course every few years to keep his skill's up to date, even though he is last stage now he can still show me i am wrong with the words to songs ect by showing his thump up or down. He also loved red meat and heaps of butter and also was a workaholic and had a few concussions in his life. No one knows what the trigger for PSP is apart from stressed genes from the mother, it wouldn't surprise me if they come up with some other reason in the future, take care all xx
I have never heard this, and wonder, Joey, where you've run into it? The studies Strelley describes mention education level, not intelligence, and the two authors came to completely opposite conclusions, results readily explained by selection bias, as the passage quoted by Strelley notes.
For comparison, you might want to look at the editor and writer Michael Kinsley's very interesting article in a recent New Yorker magazine. He has parkinson's, and discusses, among other things, what is known as the "parkinson's personality" and his own struggle to understand the effect the disease is having on his intellect (not as negligible as is generally believed).
He notes that Hitler, Franco and Mao Zedong are all believed to have had parkinson's, as well as Michael J. Fox and Pope John Paul. Big personalities, but other than that what sort of generalization can usefully be made? The typical personality is described as "rigid, punctilious, serious, stoic and uninterested in others." If this is true, he asks, does it indicate that the disease causes these traits or that people with these traits are more likely to get parkinson's? And of course he doesn't think this describes himself, but has to admit he might not know!
Anyway, the article is worth searching for, not least for the fascinating view it provides of an intelligent man grappling with the threat to his mind, which is something all of us here can relate to, I imagine.
All the best to everyone, Easterncedar
I totally agree. My Sharyn was brilliant with a BA in journalism and a career as a technical writer. Mind was sharp right to the end but very, very slow to get out a response. Responses were there but just couldn't be articulated in a quick manner. Comments like that just re-enforce the fact that a lot of the medial professionals don't have a clue about PSP. Of course we've all known that for years haven't we? LOL If a doctor doesn't know that correct answer they should say so or just keep silent. So many think they are above reproach and know it all. IMHO Thank God we had a great doctor for Sharyn, one who would/could say "I'm not sure but I'll check". Jimbo
That is BS. My mom was one of the smartest/ wittiest people I know. I have never read that and would be very upset if I did. Things are bad enough without false information of that sort.
