My dad has psp,ive been at the hospital all day with him,his jaw locked and hé couldnt open his mouth,has this happened to anyone.

[Robin20]

[edkor]

No it has not happened to me . But I can see it happening. Is he alright ,what happened ?

[Hidden]

Yes it has happened to my husband at times you just can't get food or drink past his teeth

I one occasion I was trying to put drops under Doug's tongue for excess salivation and the carer stuck her finger in his mouth to try and help out and he firmly clamped down on it and couldn't let go.just to let you know she won't be trying that one again in a hurry!

Ps we are still good friends !!!!!

[Robin20]

Hes home now,it opened in the hospital,nobody seems to know anything about psa its frustrating.its closed again,but hes in bed so see what morning brings.good idea about the drops,does it happen a lot.

[Baddie in reply to Robin20]

Hi yes it can happen but then it will relise my dad locked down on my mums finger too it is all part of the illness. sadly my dad has passed away 20 December

What everyone should do is go on the psp website and get them to send you cards on psp and then if your dad has to go on hospital give the doctor a card.we did that with our dad we still carry the cards around with us and give them to people as not many people out there no about psp

We are doing our best to raise awareness on this terrible disease

And raising money got the psp association

Get every help you can with your dad we had carers in nearly 24/7 till dad passed away in dr Kershaws hospice

[oops54 in reply to Baddie]

hi baddie, can you tell me which website do i need to go to for the cards on psp. my husband has just been in respite care for two weeks,and when i went to collect him today the nurse asked me what is wrong with your husband,I could not believe what she said after two weeks of him being there, but i was polite and told her ,but why i`m shocked is I filled out a lot of paper work and named his condition,all of his problems what he ate ,ect, they either don`t pass on the information or don`t care.but again she did not know of psp.regards christine

[Baddie in reply to oops54]

Go the psp web site and email them they will send you what info you need we get our cards from them

Even though our dad has passed away we still carry them to make people aware of psp there are so many doctors and nurses don't know about psp.we also go to psp meetings and meet people with psp hope you get theses cards they are a god send so you don't have to keep explaining as it does frustrate you.when our dad had to go in hospital we even gave the card to the ambulance staff.

[greyhoundmom]

My husband is beginning to do this. Since he's almost totally nonverbal, it's only obvious during mealtime, giving him meds, or tooth brushing. At this point, if there's something that needs to go into his mouth, and he can't open it, sometimes it helps if I do a slow "countdown" - "1, 2, 3, open". If that doesn't work, I tell him I'm going to help him, at which time I use 1 finger on his chin and gently try to push his lower jaw down, while doing another countdown. Some times this works...sometimes not. If not, I just tell him I'll wait. Same with toothbrushing. His poor toothbrush looks like the dog got a hold of it, with all the toothmarks on it.

I don't know how long this symptom will last, or if it will get worse. PSP is in the drivers seat and we're just going to deal the best we can, with whatever comes along. The other day we had gotten him laid down in bed and I turned around to do a few other things. When I turned back to him, I saw that I hadn't pulled the blankets up onto him and suddenly realized that, of course, he is unable to do that small task by himself anymore. I thought, HOW in the world did we get here, when less than 2 years ago, he was able to take the dog outside for a walk, totally unaided. What a devastating disease.

-- Connie C.

[quickgel]

Yes, in fact cleaning my wife's teeth became a bit of a 'cat and mouse' game. A carer was the first to get caught so I took over and had exclusive rights to that aspect of care. Removing a small denture was the riskiest bit and I'm not sure I didn't catch the hint of a smile as I tentatively removed said item and narrowly missed getting caught. I hope it was a mischievous grin as any form of pleasure was a welcome sight and well worth the occasional nip. In the progressive nature of this disease it's likely that this symptom will eventually pass.

[jimandsharynp]

My wife's jaw is not locked but she barely opens it enough to get a spoon of food in. Locking may be a symptom, not sure. I know someone posted having a terrible time getting a patients false teeth in. Look at old postings on this site. Good luck.

Jimbo

[Robin20]

Locking is part of the symptom,my dad was taken in hospital again with it,and has a very bad infection coming from some where.hate seeing him like this,my mum is heartbroken,not sûre if hé can open his eyes,they have Been closed all day x

[oops54]

hi robin my husband`s jaw locks some times but not for long,and feeding can be very hard , cheers, christine

[Robin20]

Thanks christine.

[pollyannajo]

hello everyone ,yes my relative locks his jaw sometimes. it is very distressing and also he just hums and doesn't speak.

I have found different days different problems .has anyone encouraged their loved one to yawn? I know it sounds ridiculous but when my relative yawns his mouth opens so I keep yawning with him!

love pollyannajo