Radiation Cystitis

About two years after my radiation treatment, I developed both radiation cystitis and radiation proctitis. Both were mild. We treated the proctitis briefly. Both eventually resolved. Hope you continue to do well.

I've had bleeding two or three times since SBRT four years ago and it's scary and annoying, but I've accepted it. The first time I had it, I had a cystoscopy to examine the bladder and they found nothing, but that actually exacerbated the bleeding, which had tapered off by the day of the procedure. On the subsequent occasions it went away after a week or so. I hope you've seen the last of your occurrences.

I havent but sure do wish you full continuing healing.

I'm so sorry you had to go through that. I too developed Radiation Cystitis about 2 years after Radiation Therapy. I was in and out of the ER too many times to mention for the inability to urinate because of the blood clots. I went to Hyperbaric Treatments also and was "blood-clot" free for about 6 months. It then started all over again. My urologist did some cauterization, and that seemed to work. That was last summer. About a month or so, the problem started again. This time, however, there was no inability to urinate, even though there were blood clots; I was able to pass them. I'm scheduled for a cystoscopy to check things out at the end of the month. I was told that once you have Radiation Cystitis, you may very well be subject to these problems on an ongoing basis. I can deal with occasional bleeding and clotting as long as it doesn't entail urinary blockage.

I’ve been on catheters for the last six months. I can pee a bit during the day but nothing at night. Actually I’ve gotten used to the damn things. Emptying the bladder is a treat. My cancer spread to the bladder and I had a tumor removed which exacerbated the urinary problem. Urine backed up in the kidneys and sent me to the ER with excruciating pain. No issues since I started self catheterizaton

Thanks for your good wishes