Anyone experienced CCAM?

[Babypud19]

Our 20 week scan showed CCAM of the left lung, saw the consultant yesterday which was reassuring and now going to be seen every 2-3 weeks to check on size of cysts and any complications. Just wondering if anyone else's baby had this diagnosis? It's rare but most hospitals see it about twice a year.

We've been on an emotional rollercoaster in the 5 days we had to wait between appointments but now just trying to get on with things and remain positive and not stress our boy out. Just interested to hear if anyone else had the same and find some parent to parent support.

[Judybear]

hi. i have a daughter who was diagnosed with this on her right lung at 20 week scan. This hasnt had any effect on her life at all. no extra illnesses or shortness of breathe and unless told about then you would never know. shes just turned 16. hope this helps

[Babypud19 in reply to Judybear]

Thank you! We've now had two consultants scan us and they've been very reassuring and most of the stories I've heard have been like yours. Thank you for sharing, makes us feel less alone in this.

[Judybear in reply to Babypud19]

no problem and if ever you want to ask anything etc please dont hesitate to get in touch. there still is much info out there and I think that makes it harder to grasp as we all tend to think of the worst

[Bobblebaby]

My unborn baby has just been diagnosed with this too ♥️

[Babypud19 in reply to Bobblebaby]

How far along are you? We were terrified at the start but we're now at 31 weeks and things seem to be going well. We have been very reassured by the information the consultants have been giving us. What's online makes it sound much scarier. Are you in the UK? X