Help with wind, please: Hi all, I am... - Pelvic Radiation ...

Pelvic Radiation Disease Association

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Help with wind, please

CrochetDancer profile image
11 Replies

Hi all,

I am looking for some help or remedies for wind.

I (like most of us on here) have a lot of scar tissue/adhesions caused by radiotherapy and operations. I get a lot of trapped wind because my gut can’t expand or retract like it use to, hence the wind gurgling and rumbling around like a moody and grumpy volcano.

Any help or ideas will be greatly welcomed.

Sending you all love and good vibes,

Lisa x

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CrochetDancer
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11 Replies
Perido profile image
Perido

Hi CrochetDancer

I wonder if charcoal tablets might help? Could be worth asking your local paharmacist.

CrochetDancer profile image
CrochetDancer in reply toPerido

Thank you. I will ask my colorectal surgeon. I hadn't thought of that x

Ladyparts profile image
Ladyparts

I often use peppermint tablets - I think they are called 'De-gas' in Australia. I did buy some called Gas Busters once, which I thought was pretty funny. Who you gonna call?!

Wind can be so cruel. Sometimes the tablets help, sometimes not so much, but worth a try x

CrochetDancer profile image
CrochetDancer in reply toLadyparts

Hi Ladyparts,

Thank you for your reply.

I do use Rennies but they don’t do much so I tend use peppermint sweets.

Lisa x

Jimbo65 profile image
Jimbo65

I did a FODMAP diet that helps with wind. Cutting out wholewheat and fizzy drinks definitely helped. Try mint tea too. Eating certain veg can definitely cause unpleasant wind. Its a minefield deciding what to eat when I go out as its so hit and miss as to what can cause issues. See if you can get referred to a dietician it might take a while but well worth a chat about diet with someone in the know.

CrochetDancer profile image
CrochetDancer in reply toJimbo65

Hi Jimbo65,Thank you for your reply

I seen a dietician and I am on a low residue diet. Yes, it is a minefield regarding food.

I was told when I was in hospital (with a bowel obstruction) that I should be on q liquid diet because the enteritis is stop my gut from squeezing and retracting. I mostly eat soup and yogurt but I find I haven't got much energy. Maybe, this is why I am having problems with wind.

Sending love and good vibes,

Lisa x

Jimbo65 profile image
Jimbo65 in reply toCrochetDancer

It sounds like you are really struggling. I would certainly see if you can talk to someone about supplements to build up your strength. Have you been tested for anaemia as that can make you feel tired and run down. Wishing you the best and hope your health professionals can help you get to grips with things.

CrochetDancer profile image
CrochetDancer in reply toJimbo65

Hi Jimbo65,I am 2 Ensure a day. My blood tests (when I was in hospital with the bowel obstruction last weekend) came back as fine.

I have 2 stomas (colostomy and an urostomy) and the colorectal surgeon wants to put in a 3rd stoma and put me on TNP! I am terrified of that. It is hard enough with 2 stomas but the consultants don't really care about that. I haven't heard of anyone else having 3 stomas and neither has the stoma nurses or anyone else. I am throughly fed up.

Thank you for your kindness,

Lisa x

Jimbo65 profile image
Jimbo65 in reply toCrochetDancer

I can't begin to imagine what you are going through CrochetDancer. Its all a minefield and I really hope that your surgeon will listen to your concerns and try to find a better solution for you. All this 'stay strong' nonsense just doesn't do it for me, so I say, scream when you need to, cry and punch pillows. I find it helps! Wishing you best outcome for you. Xx

CrochetDancer profile image
CrochetDancer in reply toJimbo65

Hi Jimbo65,

Thank you for your lovely message.

All the consultants want to do is operate. But if they did do a 3rd stoma they wouldn't be treating the enteritis, so what is the point? They don't listen to mine or anyone else's concern or worries.

To add insult to injury the late effects clinic (here in Cardiff) told me they can't help me with my late effects! I have reported them. They are there to help but are more concerned with early finishes and taking holidays.

I will let you know how I get on.

Lisa x

RoseTyler profile image
RoseTyler

I take Buscopan to help with trapped wind. It usually works, but sometimes I need to take more than one tablet. It really is hit and miss and a right pain in the arse, this PRD. 🙄Good luck! x

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