Good news : Our youngest granddaughter... - Positive Wellbein...

Positive Wellbeing During Self-Isolation

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Good news

β€’55 Replies

Our youngest granddaughter, who has JIA (Juvenile Idiopathic Arthritis), Uveitus (Uveitus is the eyes) has been taken off Humira as she's doing so well, no more fortnightly injections. At present she's in remission.

We are over the moon. What I will say though is Humira saved our granddaughter's sight.

Alicia😊

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55 Replies
β€’
RoadRunner44 profile image
RoadRunner44

How fantastic for you all. I am delighted too!

β€’ in reply toRoadRunner44

Thank you, we are so made upπŸ™πŸ˜ŠπŸ‘

springcross profile image
springcross

That's such fantastic news cf, I'm so very pleased for you all and can understand why you are so happy. Long may it continue I say. πŸ™ xx

β€’ in reply tospringcross

Thank you and I agree, long may it continue. πŸ™ xx

That sounds wonderful Alicia. I’m joyful to hear that good news. She is very young and full of life, with great awareness of diet you share with her, I’m sure she is thriving. Have a wonderful rest of the day Alicia! πŸ₯³πŸŽ‰πŸŽˆβ€οΈβ€οΈβ€οΈβ˜€οΈπŸŒ»πŸŒΊπŸŒΉπŸŒˆπŸ™xxxx

β€’ in reply to

Thank you KoKo, we are so pleased. She was only 2 when the pain started in her joints. She's a little fighter and a feisty little thing. xxxxπŸ’œπŸ’œπŸ’–πŸ’žπŸ’—πŸ’—

Imaaan profile image
Imaaan

Nothing beats when meds/ treatments work well. Its definitely a cause for celebration. Hope she continues to be in this better state.

β€’ in reply toImaaan

Thank you and we hope so too. Time will tell. She's a little fighter.πŸ™πŸ™

Hi Alicia that's great news no wonder your over the moon I hope she stays in remisshion πŸ€—πŸŒ›πŸŒŸ

β€’ in reply to

Thank you Mandy, we're so pleased.πŸ˜ŠπŸ€—πŸ™πŸŒΌ

Marnie22 profile image
Marnie22

That's really great. πŸ™‚πŸŒΈ

β€’ in reply toMarnie22

Thank you MarnieπŸ™πŸŒΊπŸŒˆ

Jennymary profile image
Jennymary

Hi Alicia, so pleased for your granddaughter and family, hope she continues to do well, despite her condition x

β€’ in reply toJennymary

Thank you Jenny.

Also, I hope going back to work for you has gone well.

Alicia xx

Jennymary profile image
Jennymaryβ€’ in reply to

Hi Alicia, it's been a tough start back, as the app crashed so people kept ringing to make their bookings, the cordless phone ran out of battery on Monday or Tuesday it was that manic, 2 managers on different shifts said it was the worst shift they'd ever had there, the app is now sorted so hopefully it'll be easier from now on x

β€’ in reply toJennymary

Hi Jenny

What a 'baptism of fire' that doesn't sound good at all. I can well imagine how manic that must have been, it's good you've been busy and people want to book but not like that.

I'm so pleased the app is now working.

Take care xx

Jennymary profile image
Jennymaryβ€’ in reply to

Thank you, yes, hopefully it'll get easier now x

β€’ in reply toJennymary

I certainly hope so xx

Sheila_G profile image
Sheila_G

Wonderful news. Onwards and upwards.

β€’ in reply toSheila_G

Thank you SheilaπŸ™

Hi Alicia, that is fantastic news for for your granddaughter , really made up for you all . Clive X πŸ€—

β€’ in reply to

Thank you Clive, so lovely of you to say.

Alicia xx

coat2003 profile image
coat2003

STAY POSITIVE AND OPTIMISTIC. She is well and truly keeps hanging on there. No worsening.

β€’ in reply tocoat2003

Thank you and we definitely will, she's a little fighter.πŸ™πŸŒˆπŸ’—

Lazyiamnot profile image
Lazyiamnot

Such feelings of hopelessness and sadness when we watch them struggle, such abundance of relief, when they pull through. Delighted for your family.

β€’ in reply toLazyiamnot

Well said and yes that's how we felt when she was diagnosed but there's plenty of positivity now.πŸ™πŸŒˆπŸ˜Š

Lazyiamnot profile image
Lazyiamnotβ€’ in reply to

Indeed.

β€’ in reply toLazyiamnot

πŸŒˆπŸ‘πŸ™

Dovedale4 profile image
Dovedale4

That is wonderful news, Alicia, and I can well understand your relief and happiness. Once again, thanks to our wonderful NHS 😊🌷🌺

β€’ in reply toDovedale4

You've said it in one, the NHS have been amazing πŸ™πŸŒˆπŸ‘

Dovedale4 profile image
Dovedale4β€’ in reply to

πŸ˜ŠπŸ‘πŸŒ·

β€’ in reply toDovedale4

πŸŒΊπŸŒˆπŸ™πŸ˜Š

Floxxy profile image
Floxxy

That's great news. X

β€’ in reply toFloxxy

Thank youπŸ™

Rachmaninov2 profile image
Rachmaninov2

That’s great news Alicia, I hope your granddaughter remains in remission. My best wishes to you all. πŸ™‚πŸŒˆπŸŒΈπŸŒΊπŸŒ·πŸŒΉπŸŒΌπŸŒ»

β€’ in reply toRachmaninov2

Thank you Rach and we do as well. She's doing so well.πŸŒˆπŸ‘πŸ™πŸ’–πŸŒΌ

What absolutely wonderful news for you all Alicia. Sometimes we are quick to condemn drugs and not praise them for the amazing results they can sometimes have. Fabulous, fabulous news! xxπŸ’–πŸ˜Š

β€’ in reply to

Thank you Sue and you are so right, the Humira drug she was on saved her sight, pretty awesome I'd say.πŸ™πŸŒˆπŸ˜ŠπŸŒΌπŸŒΊ

Fantastic news for you all and must be a huge relief too. Thanks for sharing your good news!

β€’ in reply to

It really is and thank you.πŸ™πŸŒˆπŸ˜ŠπŸŒΌ

MaggieSylvie profile image
MaggieSylvie

That's brilliant news!

β€’ in reply toMaggieSylvie

Thank you Maggie.πŸ™πŸŒˆ

Nines profile image
Nines

That’s absolutely brilliant news and is so good to hear. Congratulations to you and your family X

β€’ in reply toNines

Thank you, we are so pleased.

Alicia πŸŒΌπŸŒΊπŸ˜ŠπŸ™πŸ₯°

Madmolly profile image
Madmolly

What brilliant news defo time for celebration

β€’ in reply toMadmolly

Thank you and it most definitely is.πŸ™πŸ˜ŠπŸŒΌπŸŒΊ

Thank you very much Jerry, we are so happy.πŸ˜ŠπŸ™πŸ‘πŸŒΌπŸŒΊπŸŒˆ

Lola2003 profile image
Lola2003

Wonderful news. So happy form you and your family.

β€’ in reply toLola2003

Thank you.πŸ™πŸ™

diana1998 profile image
diana1998

Wonderful news for the whole family Alicia. So happy for you. πŸ€—πŸ‘

β€’ in reply todiana1998

Thank you Diana, it really is πŸ™πŸ™πŸŒΌπŸ˜ŠπŸ€—

RLN-overcomer profile image
RLN-overcomer

Greetings: I remember praying for your grand-daughter. :) I thank GOD for your great news, on your little grand daughter :) . I had a cousin who had juvenile arthritis. When I was younger I always wondered why he couldn't play outside like the rest of us. The J.A. did skip his 2 children, but I do continue to pray this ailment doesn't touch his 3 grandchildren, my little cousins.πŸ™πŸ˜‡πŸ™πŸ˜‡πŸ™πŸ˜‡.

β€’ in reply toRLN-overcomer

Thank you so much, I really do appreciate your kindness.

It's an awful condition, especially ones so young. Our granddaughter's had it for 3 years now but she's doing so well. It started in her joints but they got better and it went to her eyes, Uveitus. The medication is amazing and has saved her sight. I'm so sorry to hear your cousin had it when younger but really pleased to hear his children didnt get it. I really hope and pray his grandchildren don't get it.

πŸ™πŸ™πŸ™

RLN-overcomer profile image
RLN-overcomerβ€’ in reply to

Uveitis runs in my family. My dad , his 2 sisters, and my 2 cousins, on my dads side of the family have it,. and need eye drops daily. Some of them have had surgery to relieve the pressure when the medication(s) wasn't enough :) . They all are doing well as long as they take their eye drops, and see their Dr.s for follow up exams :) .I also have a friend who lost his eyesight because of Diabetes, and Uveitis. My friend is using medical marijuana, and has gotten some of his vision back in a 4-6 hours period after using it :) He can see 50%,only in black, and white, and grays , which is an amazing gift :| . The medical Marijuana cost him $600 a month. to use when he goes out. :) Some vision is better than no vision :) My dad lost his sight in 1 eye, and I thank GOD he has 20/40 vision with his glasses on in the other eye. :) I can't imagine your young Grand child having to handle J. A., and Uveitis. I know what doesn't break you, will make you stronger. Your Grand daughter has your strong DNA, and is obviously Energizer Bunny# III.πŸ˜‡

β€’ in reply toRLN-overcomer

Oh my goodness, it really does run in your family, I really do feel for your family, daily eye drops arent nice. Our granddaughter started off with them, I seem to remember, 8 times a day, she hated them. She might need them again but we'll wait and see.

I'm sorry your friend lost his eyesight but its amazing that he's got some sight back with medical Marijuana, I've never heard of it. It's expensive but so are your eyes, they are precious. I'm sorry your dad lost his sight in one eye but I'm so pleased he has his sight in his other eye.

Thank you and oh she's feisty for sure, I'm so so pleased.

Alicia πŸ˜˜πŸ€—πŸŒžπŸ™

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