Eighteen months since PMR diagnosed, was on 15mg daily now down to 3mg per week. The aching is much milder, very controlled reduction around 7% per month. Shoulders aching upset sleep but generally I believe it is getting better. Toothache still a problem - only a few teeth left and fillings keep falling out (I'm 74 year old male still working and enjoying it) Bone density tests delays 5 weeks to be seen further 5 weeks since and still no results.
Generally I appreciate how lucky I am, hope fellow sufferers progress as quickly as is safe!. Daily Express suggested statins may influence and encourage onset of rheumatic problems - I've been on statins over four years so perhaps there is a link . Thanks to previous contributors who encouraged me during blacker days.