Inflammation

[Daffodilia]

Thank you for the excellent webinar with Prof Dasgupta yesterday - next time could he look at screen so we can hear better? I asked a question that wasn’t passed to him. He showed pictures of blood vessels for GCA and LV - in PMR - are the blood vessels in the muscles affected like that please?

[PMRpro Ambassador]

They don't know - if, then it is the very tiny capillaries in the muscles and it is difficult to look for the swelling or discrete patterns of inflammation. Personally, I think it is a fault in the mitichondria, the powerhouses of the cells, but to investigate that they would have to do muscle biopsies on patients - and doctors seem reluctant to ask them to do it!

[Daffodilia in reply to PMRpro]

Thank you - it is so good to have an answer to something I have wondered about for about 7 years

[piglette]

I agree the sound was pretty bad. I could hear a few words clearly and then some totally blurred. Of course no one could tell him.

[PMRpro Ambassador in reply to piglette]

As soon as I joined I mentioned it on the chat in the hope Sophie might interrupt and tell him. She did during the questions but it was a bit late. I switched on the captions - and had a hearty laugh at some!! I had a pretty good idea what the worst bits should have been but even so ...

[piglette in reply to PMRpro]

The thing was Sophie was SO clear. I wonder if his equipment or line had a problem?

[PMRpro Ambassador in reply to piglette]

Not sure where he lives - rural internet can have its moments!! I had just finished a teams meeting with my architect and daughter - his had a few freezes but nothing like Dasgupta's. I often find him a bit difficult to understand in presentations so I suspect his diction contributes and he was far better when he faced the computer that had the microphone. I thought Sophie was speaking particularly slowly and clearly. Humphrey at the AGM left a bit to be desired too - experience at remote contacts maybe?

[piglette in reply to PMRpro]

I suppose I got the gist of it on the other hand.

[PMRpro Ambassador in reply to piglette]

A lot I thought was well above the heads of at least half the audience even if you could hear it all. I felt it was "a lecture I prepared earlier" ... There was an immense amount of content and he had a limited time so some of the background that would have helped wasn't there.

[piglette in reply to PMRpro]

That is absolutely true. I did think that too.

[Daffodilia in reply to PMRpro]

I think I was ok to understand what I could hear but have followed forum and read stuff for about 6 years

[PMRpro Ambassador in reply to Daffodilia]

There were bits even I was struggling to understand from the aural point of view - I'd heard/seen a lot before in a meeting so content wasn't a problem but it was hard work at times.

[Broseley in reply to PMRpro]

I think it would have helped if he had referred to his slides. I found it difficult to study the slides and listen to him at the same time. I gave up in the end, it was just too difficult to hear, especially as he went so fast. The captions didnt make sense so they didn't help. The bits I picked up on sounded really useful.

[Palgeo in reply to PMRpro]

I also used the captions but the patch containing the text covered part of the illustrations which was a further dilemma!

[PMRpro Ambassador in reply to Palgeo]

Some were far too "busy" as well.

[Estellemac in reply to piglette]

I put it in the chat as a direct message to the Prof. He didn’t read it as he was focused on the presentation.

[piglette in reply to Estellemac]

I did too. I agreed with someone, it was probably you!!

[Tappo]

How did you hear about the seminar? Is it recorded?

[DorsetLady PMRGCAuk volunteer in reply to Tappo]

If you are a member of the charity you would have been sent an email about it an inviting you to attend and there was also a post on this forum a couple of months about it. Yes it has been recorded…so if you contact charity you should be able get a link… they won’t have been sent out yet..see post -

healthunlocked.com/pmrgcauk...

[Tappo in reply to DorsetLady]

Thank you. I am a member but didn’t receive an email. I must have missed the post here too 🙄. I will check out the recording when available.

[PMRpro Ambassador in reply to Tappo]

You will need to contact Fran or Sophie - make sure you are on the mailing list for the charity.

[Tappo in reply to PMRpro]

Thank you. Do you happen to have their email address?

[DorsetLady PMRGCAuk volunteer in reply to Tappo]

Try this -

[e-mail] for Charon Balarabe who sends out links

Or contact with Fran or Sophie on here via chat -see this for moderation te

healthunlocked.com/pmrgcauk...

[PMRpro Ambassador in reply to Tappo]

Their contact details are under The Moderation Team - at the side on a computer, towards the bottom of every thread on a phone.

[Tappo in reply to PMRpro]

will do-thank you.

[DorsetLady PMRGCAuk volunteer in reply to Tappo]

Just make sure emails from charity haven’t gone into spam.. if you mark them as safe sender then they shouldn’t

[Ridge]

Oh bother! I forgot to check in but then I have a cold and would have found it difficult anyway. Can anyone give a synopsis?

[PMRpro Ambassador in reply to Ridge]

It was nearly an hour of quite technical stuff, with slides - so no, not really! It was recorded so you should be sent a link for that.

[Ridge in reply to PMRpro]

Thanks. I’ll check it out.

[Gaycreasey]

I agree the sound quality wasn’t good and the content rather over my head most of the time. I took a few note but he was talking quite quickly and I didn’t get much down. I did ask a question but it wasn’t discussed. Never mind it was nice to see this man who has done so much work for GCA and PMR sufferers.