The amazing Dr Claire Vandevelde, a Leeds Rheumatology consultant, will be talking to us about osteoporosis which we are all more at risk of both with age and being on steroids. Her talk is going to be particularly geared towards those of us on steroids and talk about both drug and non-drug options.
Places are limited but we can probably squeeze a few more people in. If interested email yorkshire@pmrgca.org.uk and ask to be put on our mailing list - you'll get a warm Yorkshire welcome
Signed up!
Won't be able to get into Yorks but hope you might be able to put salient points on here? Many thanks.
We will ask if Dr Vandevelde wants to record it (and if so give people notice to switch their video off or change names if they want to be anon)
Is the session going to be online? If so I'd love to join but I had assumed not. Whichever way. Thanks, tangocharlie.
It says it's a zoom.
Thanks - I obviously didn't look properly - sorry!
Should have gone to Specsavers! LOL Hope you can make it
Lovely, thanks - will a link be sent out? Hope I've read it all this time as would hate to get another comment re my lack of attention 🙃
Hi
I'm not in Yorkshire but I would be interested in any kind of resume of the meeting. I've recently suffered spinal fractures and am about to start bisphosphonates. Would like to be on anabolics but was told by a rheumatologist I saw privately that you only move on to anabolics when you get more fractures 🤯I have 6!
I don't think mine are steroid related as I only started on them in August for PMR but I do have ulcerative colitis which is a risk factor.
PS: My mum was a Yorkshire lass until Teeside was invented and I went to school in Yorkshire so I do feel a bit Yorkshire!
You qualify for a Yorkshire passport then but even if you didn't you'd be welcome. Dr V will not be able to answer individual questions. Not sure what you mean by anabolics - do you mean biologics such as romosozumab?
I mean the bone builder drugs like abaloperatide and teroparatide. Might have got those names completely wrong.
It's a complicated srea as there is a vast array of different drugs on offer. I have no idea why some people are offered those and others bisphosphonates/infusions. I'd give the ROS nurses a ring they're the experts.
Hope you are all better at zooming than the Southampton Teams meeting a load of us just tried to access!!
Teams is rubbish I always have problems getting on from a home PC. We are using the charity's Zoom account so it should be OK
I did express my view on Teams in the Chat!! When it goes wrong (often) then it is spectacularly!!
What time is it please?
hi there. I did get the email and intend attending via the link but I wasn’t aware we need to register? Did I miss something? Cheers,
You don't need to register as such we just ask people to confirm they are coming so we have an idea of numbers and what questions they'd like to ask
Thanks. I’ll just come and listen. Knowledge is power right 😊👍. My last Dexa was the same as the one about 3 years ago - osteopenia - so I’d like to keep on top of it if possible 😊.
Thank you for highlighting and offering this Unfortunately I cannot attend, but I definitely would like to know what can be learned. I’ve recently been told I’m borderline and it suggested that I have the annual injection. I would like to know what the alternatives are. So if Dr Vandvelde is willing to have her talk shared out, I will most appreciate it.
If you want to know about alternatives I suggest you go to the ROS website and call their helpline where they will talk you through them - they are brilliant.
Drug combinations
Why no pred tablets below 1mg?
THE CRAZINESS OF GIVING PMR/GCA PATIENTS CELL KILLING AND CANCER CAUSING DRUGS TO SPARE STEROIDS WHICH ARE HELPING PEOPLE!
Rheumatologist Yorkshire? You are invited to take part in an OMERACT study on steroid use and their effects - please do have a look
