prednisone and arthritis

[arvine]

is anyone out there suffering with severe painful arthritis, hip, hands , joints in general and cant take anything other than tylenol( which doesnt touch the hurting), because you are still on prednisone long term, need some relief, at end of rope somedays, cant do mormal activities, and live alone, widow?

[PaaDal91]

yes, my hands and wrists are v painful, my doc says not PMR related. Inflammatory arthritis. I'm not so sure. Both hands exactly at same time? Same pain? Hmm

[Pusph in reply to PaaDal91]

Yes my hands - wrists to thumbs - are painful. I'm assuming this is arthritis pain as had scans a while ago which showed arthritis. It was masked when I was on higher doses of pred I think but the lower I've got it's emerged again. Thankfully it's put up withable - at the moment anyway - and hopefully will remain so!

[arvine in reply to Pusph]

Are youbable to take anything for pain, ?

[Pusph in reply to arvine]

To be perfectly honest it's not bad enough to need to - yet anyway (touch wood)! Not sure how it will go in the future of course!😒

[Pollyanna16]

yes I’m afraid it’s a common problem. I have had successful steroid injections in my knee & base of the thumb & slightly desperately waiting for another in my thumb after the last one a year ago. I should have hassled the surgery about it! In my case definitely wear & tear induced osteoarthritis. You can get relief from using the right hand splints. Not related to PMR.

[Pixix]

yes! Thumbs, wrists, hips, knees, feet, especially toes. Awful pain, & worse now weather is dropping. Now have bursitis, sciatica & piriformis syndrome, too. I can’t take ibuprofen (but realise others shouldn’t because of pred). I have every kitchen gadget to help open jars etc. I have splints for day time, different splints for night! And now I gave Raynauds syndrome, too, which has worsened this week, & I’m told to get big gloves, & wear them over my splints! But how do I do anything then, I asked?? Ive also got hypermobility & my joints dislocate at will now, which is dreadfully painful! I’ve had steroid injections, but they are limited to a small qty allowed each year, & I have too many places needing them! I broke my Coccyx ina fall, & that took priority & winter not even here yet! Have you tried the cream? It’s recommended & helps many people. You buy it from online shops, & it’s helped a lot of folk. Lost count of times I’ve seen it on this forum, people finding it good. I’m trialling it in a couple of weeks time, after medical appointments for this month are over. But nothing to do with PMR, it’s old age & so many have it! Do you have a charity in Canada. We have a good arthritis charity here!

[arvine in reply to Pixix]

Omg! Sounds horrific, ! So sorry can relate, what cream are you referring to Ive tried a few ?

[PMRpro Ambassador in reply to arvine]

It is in the next reply - FLexiseq, Talked about a lot on the forum and you can get it on Amazon. Not cheap though.

[arvine in reply to PMRpro]

Ok thank you

[DorsetLady PMRGCAuk volunteer in reply to arvine]

Not sure it readily available in Canada -  HeronNS used to have difficulty getting it via Amazon… hopefully she’ll see this and reply. But it is good, if you can obtain it.

updated- just seen you’ve found it…

[nuigini in reply to DorsetLady]

I'm in Canada and recently ordered it on amazon.ca. It shipped from the UK so it took a couple of weeks to get to Calgary. I use it regularly on my feet, which are full of arthritis. Arthritis in other areas is managed with 8 hour slow release Tylenol for Arthritis.

[arvine in reply to nuigini]

Thank you well so far Tylenol doesnt give me much relief, since still om prednisone that all I can take, may try this flexique for hands fingers, middle ines actually lick up at times,

[arvine in reply to PMRpro]

And havebyou used this productvand can recommend?

[arvine in reply to arvine]

I have used the voltaren gel im comparison is it safer and works better?

[PMRpro Ambassador in reply to arvine]

It is different - voltaren is a topical gel with an NSAID pain killer and antiinflammatory in it. Flexisec has no drugs in it, it acts as a lubricant, a bit like WD40 for machines but it is for human joints.

flexiseq.com/

It is probably safer yes as there are no drugs, Is it better? It seems to depend on the person and their problem. Many swear by it, for others it did nothing. You have to try it to find out if it works for you. Like everything really - everyone is different.

[arvine in reply to PMRpro]

Ok yes thx I checked amazon $45 cdn,

[Pixix in reply to arvine]

You don’t have to use a large amount, & the tube is big!!!

[arvine in reply to Pixix]

Ok thank you

[PMRpro Ambassador in reply to arvine]

I haven't used it no, Don't have osteoarthritis so don't need it.

[Pixix in reply to arvine]

Sorry, I did add it afterwards, when I realised I didn’t name it!

[Pixix]

sorry, in half hour queue for flu jab in the cold with a badly sprained ankle…cream is called Flexiseq, I forgot to write that bit!

[suzy1959]

Yes. I have had two knees and two hips replaced due to OA. Nothing helped with the pain at all, even morphine. I couldn’t exercise either so the replacements were the only possibility. Then, a year or so later, my foot joined in and steroid injections have not worked at all. The only other option is surgery to fuse the metatarsals which not a very successful op so I am putting it off for now, but I am not very mobile.

[Wizards]

My arthritis in my hands started to rear its ugly head at low doses.I got cortisone shots and still do.

[Poshcards]

I use Pernaton, get it online or in Holland and Barrett, I call it my magic gel, it is brilliant and totally natural. It comes from Green lipped mussels. x

[arvine in reply to Poshcards]

For osteoarthritis? Is it a gel/cream?

[DorsetLady PMRGCAuk volunteer in reply to arvine]

This is link to UK - but as mentioned Amazon sell it -

pernaton.co.uk

You will probably get as many recommendations as replies - sometimes you just have try different ones and finds what works for you..

[arvine in reply to Poshcards]

Thank you looking for something to relieve pain so get move around better, get some exercise, know it s important to move, viscious circle tpp much pain limits movement

[Poshcards]

dI have both RA and OA in some joints, it is so good, it is a white cream, feels cold putting it on and smells mentholly , but me and more of my family and friends swear by it xx

[arvine in reply to Poshcards]

Sounds good, where do you buy it , Im in Canada, also people on here recommended Flexique

[Poshcards]

Amazon sell it and over here Holland and Barrett, google it where you are and see what turns up, good luck xx

[Flutterbies57]

I need pain relief , for other problems I have too . I am at the point I can’t cope much longer. I will be interested to see what is suggested . I have entered the very grumpy old lady stage . I hope nobody messes with me nowdays . I still live with poor husband 😱

[Didgeydo]

Hi to you,yes I am riddled with arthritis and have it in my spine which affects every joint and much worse in the wet weather,I am allergic to all painkillers and can only take paracetamol, every joint screams. Have to take prednisolone many times due to Bronchitecti,that helps the pain but it weakens ones bones. I walk with a cane and find I have a lot of pain but my philosophy is if you don't use it you will lose it,so I hobble as much as I can and count my blessings, I also live on my own , late 70's.Often cry with the pain,not that it does any good.We are all here for a reason and have decided to create my life and not fear it. I hope you soon feel better.We are alive.👍👍