Joining In: Hi Everyone, I was diagnosed with PMR... - PMRGCAuk

PMRGCAuk

21,320 members40,434 posts

Joining In

PMr2024 profile image
6 Replies

Hi Everyone, I was diagnosed with PMR this past June '24. I had just turned 70 in April, am of Irish decent so checked off many of the boxes - I began prednisone dose at 20 coming down slowly to the current 7.5 in mid-September. So far, so good. I live in Maryland, USA. I was fortunate because a friend in Canada to whom I was speaking diagnosed me BEFORE my doctor got around to it. It was she who told me about this group! I have found the information so comforting. For example -- weight gain, controlling urine and today's posts about dreaming. -- All experiences I am challenged with too. One other one I had was lower leg and foot cramps when I first woke up and stretch out while I'm still in bed. That one - cramping - has gotten better as the dose has been reduced. Thanks for everyone's participation! I'm grateful. Special appreciation to my girlfriend!

Written by
PMr2024 profile image
PMr2024
To view profiles and participate in discussions please or .
Read more about...
6 Replies

Hello and welcome, good to see you here but sorry you had to join us. I have not been here long myself. Browse round, join in. Some of the others will be along soon to greet you.

PMRpro profile image
PMRproAmbassador

Hi and welcome! Glad we've been able to help!

Supertech profile image
Supertech

Hi just to say I also get the foot cramps when stretching out first thing in the morning.

It has improved with the tapering and now on 7mg, although it has taken me a lot longer than you to get here. Well done on your fast tapering.

I sometimes slip on a pair of socks when I wake up and take my pred at about 4am. Not sure if it helps the cramps but my feet are nice and cozy.

1988jtb profile image
1988jtb

I am new USA Irish descent member too. (New Jersey). Just 8 weeks or so in the group. And you are absolutely right, what a blessing to find this group when faced with such a tough disease.

AtopicGuy profile image
AtopicGuy

Hi! I suggest you copy and paste your experience-to-date into your Bio/Profile. Medical history helps if you later need to ask questions.

Angelsmummy profile image
Angelsmummy

welcome to you,and good luck in your PMR journey.,x🌼😜

Not what you're looking for?

You may also like...

Joining a new club

Hello. My name is Kasey and after being diagnosed with PMR in July 2017 I'm learning all kinds of...
KaseyP profile image

Spasms in hands and odd cramp like weakness in legs

Hi, I'm new to this site so may have missed a post dealing with my issues. I was diagnosed with GCA...
Pat46 profile image

Pain in foot?

I have had GCA for 18 months now ,& am tapering my Pred - I'm down to 5.5mg now & am doing ok....
Janeval profile image

Touching base 2 years after joining this community.

Hi everyone, I thought I would update you on how I am going after I was initially diagnosed with...
Surami2020 profile image

First timer, just joining you...

I am now one year on from my 'visit' to hospital following a few nights of uncontrolled shivering...
MarkWin profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.