not new to this website which has been very helpful. Just reduced from 2.5 to 2.0. Have had no flares whist reducing from 15mgs nearly 3 years ago. No flares as such described on this website. More anxiety.. hair loss.. acute fatigue but no limb pains etc.
this morning I woke at 5 so frightened.. has happened once before. I tossed and turned. It was horrid. Finally took 1/4 temazapam and dropped off again for an hour. Has anyone had something similar?
I have not felt “myself” since starting pred! So grateful it relieved my shoulder hip pain but otherwise …. Anxiety fatigue. Etc . I am 85.. so know to expect to get tired more easily !!! But this fear in night was really horrid. No obvious reason I can put it down to.
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Were you aware of a bad dream waking you? Adrenal insufficiency and low pred can lead to bad dreams. There are problems whether you are on higher pred or very low pred!!!!
sounds like a panic attack. been through same as you .First one i had was so bad i had to get out of bed and the bedroom and go downstairs. when i thought about it rationally i realised it was a panic attack . when you sometimes get too hot or sleep disturbance anything that raises your heart rate can do it . it triggers your fight or flight response . in my case it was flight.had to get away from whatever was happening to me. its not rational at the time it's just body self-preservation response to your heart rate. now I recognise what it is when it wakes me up i think what might have triggered it and go through mental checklist . deep breaths to lower my heart rate, throw covers off to cool down , sometimes a trip to cool down in bathroom is enough to bring me back to normal. then distract myself with my phone for bit till i think i can sleep again. you could also get night terrors. same thing same response. lots of fun. you think your back in control of your body then it throws a spanner in the works . hope this helps .
thank you all. No dream at all that I remember. Just terror like I’ve never experienced! I remember thinking I was going mad! What would they do with me? Lunatic asylum. ?!? I tried all the breathing ex I have done in yoga.. and used to go to sleep quite often. But this seemed to grip me!! Panic attack prob Thank god for temazapam.. just a quarter of a 10mg tablet and I was out like a light for an hour or so .. with normal wake up!
I have experienced anxiety on waking several times since being on pred… but not this! Blimey!!!
I found temazepam led to anxiety type feelings. Going against some advice out there I pick up a tablet and play crossword games or patience number games etc. Soon back to sleep.
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I'm not the only person to feel like this!!
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