Need help

[Logic]

I first was diagnosed with PMR and suspected GCA in Dec. 2018. Started on 50 mg of. Prednisone and tapered off after a couple of years. Had another bout but finally completely off prednisone by Sept. 2022. I've had a few of the odd reminders like having a problem getting up from the sofa and being exhausted but nothing that bad. But now it seems my legs won't work right. I sway to the side when I walk and my legs feel like they are going to go out from under me. I have an problem stepping up a curb unless I grab a post. Could this be a return of PMR?

[PMRpro Ambassador]

It could be, but it could also be something else. It is the sort of thing you need to go to your doctor about as soon as possible - especially if it is new or started suddenly as there is always the possibility of stroke.

[Logic in reply to PMRpro]

Not new but episodic. I remember getting this at the end of both tapers at 2 mg but not as bad. I have been very active for the past few weeks climbing up on stools to do windows for fall. Thanks for input.

[PMRpro Ambassador in reply to Logic]

" I have been very active for the past few weeks climbing up on stools to do windows for fall"

Aye, well, climbing up on stools is likely to head for a fall!!!! And yes, I do realise you meant the time of year. But PLEASE don't climb on stools - a fall at your age could have horrendous consequences.

[SheffieldJane]

Have you recently had a Covid jab? I only ask because 2 days after mine, my walking was as you describe. It has now normalised but I did double my Pred dose and followed the sick day rules. It was alarming and embarrassing, I had a hospital appointment and was offered a wheelchair by a volunteer ( I was on my husband’s arm).

I am assuming that it might mean a return of PMR, or even GCA/LVV for you. (my diagnosis of 4 years). The symptom needs investigation. I hope it is not serious.

Your PMR/GCA journey does sound quite up and down and fast - as if it wasn’t properly contained somehow.

I would think that being 8 years in since PMR and still symptomatic though.