Tendon issues: Does anyone know if tendon damage... - PMRGCAuk

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Tendon issues

Lclmlbls profile image
14 Replies

Does anyone know if tendon damage, likely to have been caused by pred, is reversed when stopping the drug?

I had an issue with a twisted knee in May which appeared to have resolved with time, rest and physio exercises. I was signed off by the physio about 3 weeks ago and made my first attempt at Pickleball. 15 minutes in I badly twisted the same knee. Are my racquet sport days over or will my tendons recover when I've waved goodbye to the 'friend/foe' known as pred?

I feel (and I'm sure everyone else does too) my life has been curtailed so much by this unexpected, horrid PMR.

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Lclmlbls
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14 Replies
SnazzyD profile image
SnazzyD

Pred can make tendons more susceptible to damage. My issues came to a head when I was under 5mg. At first it was minor pain in various places in my body but they resolved over some months but my Achilles tendons were awful. Both a podiatrist and a pelvic specialist physio identified that the weakness in my hips, abdomen and lower back, along with my gait were causing a knock on effect on my Achilles. I didn’t have PMR, just GCA so higher doses of Pred. I am fine now but it took specific strengthening exercises and orthotics to prevent the abusive force and cure the problem. Had I got away with it without Pred, who knows? I expect the ageing process may have shown a light on it eventually. I did have crippling tendonitis after repeated courses of a Quinolone antibiotic over 6 months about 15 years previously.

Lclmlbls profile image
Lclmlbls in reply toSnazzyD

Many thanks for replying. Sorry to hear about your situation which sounds much worse than mine.

I was hoping someone would say ‘hey, yes everything will be ok when you stop taking pred’. That’s not going to happen is it?

SnazzyD profile image
SnazzyD in reply toLclmlbls

Not as simply as that. My tendons are fine now but I now look after them and try to stay strong. What I’m trying to say is that it’s not all down to Pred so that no Pred = back to normal. One has to get into training to deal with the deconditioning and rubbish habits we develop as a result. You could well be ok but a bit of detective work and then the correct remedial action for you as an individual is probably needed. Nobody comes out of a long term systemic illness without needing a bit of a rethink and a do up, Pred or no Pred.

Lollybygolly profile image
Lollybygolly in reply toSnazzyD

My physio explained that tendons are like thin hairs, when pulled into a ponytail they’re incredibly strong but seperated they’re weak. So strapping supporting warming them up properly will keep them working as a team. When they “blow” and swell up it’s incredibly important to cool, use anti inflammatories as gel or tablet, rest and use judiciously till pain free. After a blow up we have to protect them again by strapping cooling and gentle exercise. Even top sportsmen and women get tendonitis, and sports therapists know what to do.

Lclmlbls profile image
Lclmlbls in reply toLollybygolly

That makes sense. There was a lady at pickleball who had her knee strapped. That’s probably what I should have done. I maybe will will give that a go in a few weeks. It’s all a learning curve isn’t it?

Lollybygolly profile image
Lollybygolly in reply toLclmlbls

Knees are tricky aren’t they. I’d definitely get your physio to recommend the exact support you need as there are so many with different aims. I used an open hole knee support after cruciate surgery: compression isn’t good for a healing knee.

Mansplainer101 profile image
Mansplainer101 in reply toLclmlbls

If you are going to wrap your knee: last time I had this problem, I ordered about 8 different knee "sleeves" from Amazon, tried them all for about two weeks, and sent them all back save this one: amazon.com/gp/product/B0734...

It extends well above and below the knee, doesn't ride up or down, doesn't smell (don't laugh, as some do), doesn't cause excessive sweating, etc., etc. Needless to say, I have no financial interests in this product.; just a happy customer.

Lclmlbls profile image
Lclmlbls in reply toMansplainer101

Thank you for that, it’s useful to have advice from a user. Sadly it is out of stock but I will try another supplier.

PMRpro profile image
PMRproAmbassador

Once a tendon is delicate it remains so. And it doesn't have to be due to pred.

Lclmlbls profile image
Lclmlbls in reply toPMRpro

Thanks, that’s not what I wanted to read! I know I can rely on you for an honest sensible answer. I just hoped I could get back to pre PMR/pred fitness eventually, and play the odd game of badminton and pickle ball like others of a similar age but I know the mere aging process will take its toll regardless.

PMRpro profile image
PMRproAmbassador in reply toLclmlbls

You will - I always mention Skinnyjonny - having been on pred didn;t stop him climbing Annapurna IV just before Covid! But you can't dive straight in where you were before!

Charlie1boy profile image
Charlie1boy

Not sure it will help you to hear this, but I managed to carry on playing racquet ball throughout over seven years of pred, except for a break during the early months of covid.

I did not try to play too competitively though - more from a social point of view, and to enjoy a pint afterwards. I have stopped now, but more because of age, and a dodgy heart condition.

Good luck.

Raewynne profile image
Raewynne

I have had tendinitis flare up in a number of areas of old Injuries since I've been on prednisolone. All sorts of funny things happen. Even chilblains flare ups.As I going through a relapse I am aware that these things do happen. I hope my body recovers one day.

Sharitone profile image
Sharitone

I feel (and I'm sure everyone else does too) my life has been curtailed so much by this unexpected, horrid PMR.

Amen.

And I hate the word 'fatigue'. It's the new 'f' word, imo.

I'm slowly - very slowly - learning to build my life and expectations on things I can do, not the things I can't do any longer. It does make things easier.

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